How did you get your PEs?

I got sick. Was diagnosed with bronchitis, then pneumonia. My chest and back hurt terribly, and they just kept giving me antibiotics and stuff for heartburn. Finally, after 3-4 months, I switched drs because I knew something had to be wrong. He caught the PE. That was a year and a half ago and I'm much better, but still in some pain. I'm just not the man I was before. It's like it aged me 40 years.

I wouldn't mess with that stuff, I'd go get that checked. did your doc take you off the thinners??

I wouldn't mess with that stuff, I'd go get that checked. did your doc take you off the thinners??

I wouldn't mess with that stuff, I'd go get that checked. did your doc take you off the thinners??

I had bilateral pes in November or 2016. The 9nly symptoms I had was High BP and a model prick poke in my chest. I. was told that mine where relatively small. I was on blood thinners for 6months and came off in May of 2017. After follow up scans I was told there is no evidence that I had any PEs. Blood thinners do not break up blood clots, it just makes the blood flow better and not clotting any further. Your body will naturally absorb the clot back into your blood stream. Even after your done on thinners and have been cleared of pes (dissolved), you could have maybe anxiety which can cause and mimic pe symptoms. This is just from my experience. but I have been fine the past year. I was told by my hematologist I did not need to stay on blood thinners. He said if it gives me piece of mind I can take aspirin. So I take aspirin and fish oil with omega 3. Omega 3 has a little of a blood thinning effect. So I choose this method. Thinners are a strong and hard drug for a lot of people to be on. I do not have a blood clotting disorder so my doctor didn't think I needed to be on it.

Symptoms? Where to start. I was a regular flyer across the Pacific. Australia to Dallas 50-60 times. Never had an issue. Then 2 trips ago I developed a sore left calf when I got back to Australia. It was SVT. This year we went to the USA and when I got off the flight in Dallas I had a pain in my right calf. A week later I still had the sore calf and developed severe pain in the right side of my back. I took pain killers and soldiered on. A week later my calf was giving me heck. So I visited a clinic. Two doctors dismissed it as just a 'sore calf'. A few days later I had the back pains back. I went to a clinic. At the clinic I became disorientated and feverish. I began to throw up. The doctor there sent me straight to a hospital just a mile away. They found DVT in both legs and multiple PE's in my lungs. More fever, more throwing up and HUGE bouts of pain. They said I was a 1 in 3 chance of not surviving the night. I also had fluid on the lung and pleurisy. I also had some internal bleeding and an infection.

For me the two symptoms were the calf discomfort and the back pain. But they say everyone is different so it's hard to diagnose.

The pain I had was a 15 out of 10. I had several pain events while in hospital and still, 7 months later, have minor pain issues in the same area. I couldn't believe anyone could have such pain and never want to even contemplate having it again.

7 months on I'm struggling with getting back to a normal life. Fatigue and depression are an issue. My specialist think I'll be on Elequis for life!!!

If you even think you have a DVT and/or PE insist on the tests. Yes they are expensive but so are funerals.

for me it happened out of the blue, first with shortness of breath, then rapid heart rate and hot/cold flashes along with discomfort below my sternum. I thought it was a panic attack so I tried to calm down for the next two days. On friday it got to the point where I couldn't walk two steps without getting winded. I drove myself to the ER and after a CT scan of my chest, I found out I had bilateral PE's, a clot in each lung. They used thrombolitics through catheters in my lungs and i've been breathing much better since then, though it's scaring me that i keep having discomfort below my sternum that comes and goes, as much as the fact that I had ZERO pain throughout this whole ordeal. I'm on blood thinners currently, Eliquis, but I'm afraid of a clot coming back since both my parents have a clotting disorder, and I'm 27 years old.

mine started with pains in my right side when i breathed in, this gradually got worse over the pace of about a week. i too had hot flushes, palpitations, and fluctuating BP. Then the breathlessness became unbearable. went to hospital and had bloods taken. D dimer was really high so sent for angioCT scan. diagnosed with unprovoked PE in my right lung. i was started on Apixaban but it didnt agree with me, im now on Warfarin.