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How do I?

Posted , 3 users are following.

Bluebell21
Bluebell21

I suffer with, apart from other conditions, Fibromyalgia, Chronic Fatigue, anxiety, depression etc.

Can anyone help me with the best way for me to describe how bad my pain is to my GP?  I don't know if she just doesn't know how to help me or whether she actually just doesn't believe the constant pain I am in.

Thank you in advance

1 like, 10 replies

10 Replies

  • christine26761
    christine26761 Bluebell21

    Posted

    Hiya blubell welcome...if I was you I would research fibro, print it some info and see your doctor forearmed.,we have to take our health into our own hands..most of us have suffered from fibro CFS + other autoimmune conditions for years before diagnosis.. Rumotologists are the drs that diagnose it..ask for a referral, hope you enjoy googling..you will get soooo much knowledge youll be the expert..lol. there are some really good information sites out there, just be careful your research is not being backed by some pharmacutical company or other..be blessed gentle hugs, have a lovely day...where are you? I notiiced you wrote this only 3 hours ago..im in Australia..😍😚😚
    • Bluebell21
      Bluebell21 christine26761

      Posted

      Thanks for the welcome smile I've had Fibro and CFS for 30 years. Have been formally diagnosed by a Rheumy and several doctors. I have done loads of research over the years. I think part of the problem with my GP is that I know more about Fibro than she does!

      I am on loads of strong pain killers but am still in pain. I can't seem to get through to her how badly this illness ruins my life. 

      I'm in England and the weather is horrible but not too cold for a change 😊😊😊

    • christine26761
      christine26761 Bluebell21

      Posted

      Ive heard that the weather is pretty bad over there at the momentIve had fibro for over 30 yrs too..my mistake..I hought you were new to fibro...sooo wrong....do hope you get some info that will help you Bluebell..be blessed..😘
    • Bluebell21
      Bluebell21 christine26761

      Posted

      I'd love to know how you manage your Fibro. I am very grateful to you for your reply. It's my error. I should have said in my post that I've had Fibro for so long. I kind of managed it for many years, but since a major trauma I just can't cope with the constant unrelenting pain anymore. 

      All the very best 😘

       

    • christine26761
      christine26761 Bluebell21

      Posted

      Truly understand what a trauma can do, with having fibro too

      Im just off to bed..ill type tomorrow😃 nite nite xxx

  • Ellie1943
    Ellie1943 Bluebell21

    Posted

    Hi Bluebell. I've started to write everything down before an appointment and present it to my Doctor! This I applies to most health problems as I believe if it's written they and myself will understand better what we're having to deal with. It helps to keep a pain diary too for chronic pain illness'. Detail dates, times, activity before and after , even foods etc! Best wishes Ellie UK rolleyes
    • Bluebell21
      Bluebell21 Ellie1943

      Posted

      Hi ellie

      Thank you so much for your reply. I was just thinking last week that perhaps I should start to keep a diary of pain, etc. I do take a list with me sometimes. 

      I'm going to start a diary today. 

      Thanks again for taking the time out to reply to my question. 

      All the very best. Blue UK 

       

    • Ellie1943
      Ellie1943 Bluebell21

      Posted

      Hi Blue, hope it works for you too. It did for me last time I saw my GP. I was sent for scans, blood tests and now waiting for hospital appointment. Sometimes we have to be a bit more assertive with our Doc's as they seem to think of nothing but the Practice Budget these days with all the NHS cuts and problems. Best wishes, Ellie UK
  • kaz_40
    kaz_40 Bluebell21

    Posted

    Hi Bluebell21 You could describe your pain to you dr on a pain scale eg 1-5 5being your rolling around in agony. Try explaine what the painnis like eg sharp stabbing pain burning pain. keep a diary of all your symptoms and how bad your pain is each day it helps if we have a good gp who listens and cares. take care
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