How do I attempt to start the primal elimination diet?

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Hey I am brand new to this world though I have suffered with Hidradenitis suppurativa for over 8 years. Ive never been diagnosed by a doctor because they are to busy shoving medicine in me when they say they don't know what I have. Did my own research and discovered HS. I was relieved to find I wasn't alone and that there is things I can do to help. Now Im on my journey to heal myself. I am going to attempt the primal/paleo elimination but I am so intimidated on to where and how to start. I already know that peppers is one of my triggers. Any advice on how you started? Good Books? Nutritionist?

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  • Posted

    Nightshades are your triggers if peppers are. 

    This means you must avoid:




    Goji Berries.


    Peppers (bell peppers, chili peppers, paprika, tamales, tomatillos, pimentos, cayenne, etc)

    You don't have to do paleo or the primal diet, just avoid these foods. 

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  • Posted

    Hello. The first thing you really should do before you attempt anything is to see a dermatologist. That is the type of doctor you should see for HS. They have a better knowledge in that kind of field. I was diagnosed by my dermatologist. My regular doctor was unsure about what it was as well but it's because it's not really their field. Dermatology will have the information that you need and can help you understand it and what can help it. I do think that it's nice to have questions to ask dermatology so that everything is covered. I have pcos which plays a roll in having HS aside from it being genetic. I have had this disease for a few years and am slowly but surely learning to live with it. I have heard of that diet and for some has been a great help by helping people with the disease find remission but that doesn't mean it works for everyone. I've got a lot of things working against me which makes it very difficult to find the trigger source for my HS and a good amount of foods on that diet list play a huge roll in my diet and wouldn't be easily removed. My HS is at stage 2 or 3 and I've got the holes and the scarring but all I do is take Tylenol when the bumps in my armpits hurt and I keep my holes covered with a gauze pad and some sensitive skin pain free tape cuz it seems to heal better when covered. I think it's a possibility that tomatoes could be a trigger for me or potato chips but I'm not a hundred percent sure. You have nothing to lose by trying it. I've researched before myself and had found what I had had but a totally different issue, so I know where you're coming from. I've learned a lot being a part of this HS support/discussion group. I hope that you get the info and help that you need and good luck and wish you well.
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  • Posted

    Hi good luck with your new diet and I hope it works for you.   Doctors don't know much about HS so your best bet is to get a referral to a dermatologist.  They will give you a firm diagnosis and be able to advice you about relevant treatment.  x


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  • Posted

    I cut out nightshades first and had great results. I didn't have to do a full blown elimination diet! I found out after having a couple of flare ups after being in remission that coconut and nuts were also triggers for me.
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