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how do i cope with NEAD

Posted , 4 users are following.

tony53395
tony53395

hello everybody my name is tony, i am from manchester and i have NEAD.  i have had the condition for 4 years now and i still find it difficult to live with on a day to day basis i have lost a lot of friends becouse they are scard to help me becouse of my seizures, which i know can be dificult to see but its more difficult to have them, also i have lost my job because i worked in a kitchen cooking but becouse i have fits every day

they had to let me go.  i have lost my girlfriend becouse she couldnt keep helping me as she had 2 kids and a full time job so i dont blame her i just want to know what i can do to help me live and cope with this.

0 likes, 10 replies

10 Replies

  • peter31669
    peter31669 tony53395

    Posted

    Hi Tony 

    Sorry to hear about your situation,

    I start having seizures ( out of the blue) on the 6th of Dec 2016. I have to stop working as I'm plumber and need to drive.

    I just receive my appointment letter this morning to see a psychiatrist for advice and treatment.

    Have been seen by a psychiatrist? if not, please ask your GP for a referral ( I hear they are very good in treating NEAD.

     

    • tony53395
      tony53395 peter31669

      Posted

      yes ive seen my phycologist but it has done nothing for me nothing has changed but i see my gp next week si i will chat about stuff to him but i really apprecate your advice and i hope you can find the phycotherapy helpfull it is a verry hard illness to live with and understand 

       

    • peter31669
      peter31669 tony53395

      Posted

      Tony 

      please take it easy and try to do things you that will make you happy or things that you enjoying doing!

  • yvette9989
    yvette9989 tony53395

    Posted

    It is a difficult condition to deal with but there is help available if you can get help from your doctor.
    • peter31669
      peter31669 yvette9989

      Posted

      yep if you can get the help from your Gp.  I have to wait for 3 months before i can see the Dr !  
  • yvette9989
    yvette9989 tony53395

    Posted

    I'm sorry it will take so long for you to see your gp but I don't know what else would help. I would hope that nead might have been helpful.

    • peter31669
      peter31669 yvette9989

      Posted

      sorry for the misunderstanding, I was talking about seeing the psychiatrist is taking 3 months 
  • mary50992
    mary50992 tony53395

    Posted

    Dear Tony,

         You will have these seizure for the rest of your life, sad to say. I have had my seizures for three years now. They are upsetting. I have had them in many places. I have a warning when I see plusing green but not always. I have had all the tests and have been label NEAD. Take courage life goes on...live moment to moment for that is all we can do. Be happy you are not epilictive. The meds have terrible side effects.

  • yvette9989
    yvette9989 tony53395

    Posted

    Its difficult to deal with at first but if you can write down in a journal/diary when the attacks happen you might begin to see a pattern emerge. Talk to your GP too.
  • yvette9989
    yvette9989 tony53395

    Posted

    It's difficult to deal with, however talk to your GP and friends and family.

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