How do I Stop the sores?

Jason, I wonder the same thing.  My mouth has been inflammed since February with perhaps 1 week during the whole time that I did not have sores.  I am currently doing the Autoimmune Paleo diet, anti inflamatory supplements and the pain has lessen but not gone away.  

Jason05355, i too have had and am still suffering the same as you , now i found a MOUTHWASH that is an anistic based wash so i use it before i eat, i got it from my local chemist shop, it is made up of Lidocaine, Malox,and Calpol, it is just a mouth wash so dont swallow it, it helps me .... 

Jason, While you are going through this, I think you should drink using a straw and maybe invest in some energy drinks, something like Complan, to ensure that you don't lose any more weight. Who are you seeing about this at the moment? I remember you mentioned a new doctor, but I cannot quite remember.  In your shoes, I would try different physicians and various types of medicine, at this point you have nothing to lose and everything to gain, but you must try not to get too depressed, I realise it is hard and only people that suffer from this condition understand how grim it is....(hugs)

Jason,

Has your doctor prescribed a steroid mouthwash for you like Dexamethasone?  The other possiblity is to go on systemic steroids for a while.  Mine always came back after the prednisone pills went to 20mg or less, but the mouthwash gave me between 50-75% improvement and I could use that longer term (never remission like the pred though).  My oral pathologist wanted to do Azathioprine last pred go-round, but my liver numbers were wacky so we did pred and Plaquenil.  Pred worked again, but Plaquinel was worthless.  Now liver numbers are good and I want to try that and see if it works.

I ate a lot of ice cream when I had leasions all over my tongue, roof of mouth, checks and exfoliated gums.

Just tried a new Xylitol mouthwash and toothpaste.  Hope it works some.

its at the point now where i cant even chew soft food because any chewing motion instantly creates a new ulcer.  the area is that delicate.  how am i supposed to eati? i can baby it for a few days and eat liquids,use the steroid, it goes away - then the second i try to chew something solid it comes right back.   

Jason, I would talk to my doc (or find another if this one won't help) to get on oral prednisone or azathiorpine give how serious this has become.  When I first developed the oral LP, my tongue had sores, the roof of my mouth, the inside of my cheeks and gums were painful and red from the skin being stripped off and all I would eat was ice cream and protein shakes because they were liquid and cooling and it hurt so much.  It sounds like you need the heavy guns to get you to a more tolerable disease state.

Mine came back when I went off the pred, but then with steroid mouthwash, it was tolerable -- two ulcers in the lower back of my molars and rough/scarred inide of the cheeks, but tolerable enough to eat.

I have began clean eating, with salmon, sweet potatoes, broccoli/greens, eggs, very little refined foods or white starches (very little starch except for maybe sweet potatoes or lima beans--both good low glycemic foods), antioxidant juice mixtures (pomegranite, tart cherry, grape and cranberry--not a tart tasting mixture at all).  This has also stopped my severe arthritis pain. Also, make sure you are taking vitamin D supps.  After years of deficiency, I just barely got mine up to the bottom of normal at my last blood test, so I have upped my dose to between 6 and 9K IUs a day. 

Do not drink, smoke, or use unprescribed drugs.  If you have iron overload/hemachromatosis, get phlebotomized (red cross/other instituions will do this for free usualIy).  Avoid all plastic food containers.  Avoid all areas where there are pesticides or spraying of these types of chemicals.

Have you had liver tests or celiac disease tests?  These conditions often cause OLP.

Hang in there.

Emis Moderator comment: I have removed product/company/website names as we do not allow repeated posting of these in the forums. If users wish to exchange these details please use the Private Message service.

http://patient.uservoice.com/knowledgebase/articles/398331-private-messages

Hi Jason, I was just wondering you how are getting on..