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I have had HS for 15 years. It has gotten so much worse in my 40's. I have flare ups in my groin and inner thigh area constantly. The good news is they are not as big as they used to be. Instead of dealing with golf ball size bumps they are more like nickel size and drain on their own pretty quickly. However, once they open and drain, the healing process takes forever and usually just ends up filling back up. SO here's what I would like to hear form others dealing with this awful and embarressing disease.....How does this effect your intimate relationships? I have been married for 4 years and told him before we got engaged all about this problem and he was very understanding but now that the bumps are constant I do hear a lot of complaining about lack of intimacy. Sure there might be other things we could do together in that sense, but honestly, when youre in that much pain and draining through your gauze and underwear...does that really put you in the mood to do anything?? The other problem that has arisen is my job. I work with all men in a construction setting. Luckily I get to sit at a desk and when I have flare ups and walk with a limp I just tell them I tweeked my back. Well, they have planned a team building thing and signed all of us up for a 4 mile run for charity! RUNNING?!!!! I can't even walk half the time! I told my boss I cannot run do to a medical condtion and hoped that would be enough. Noooo, his wife texts me and says she will walk it with me instead of running. I had to tell her that with my condition it is hit or miss if I would be able to participate. I CAN"T tell her what is really wrong, she will tell my boss and I will be mortified. Even of I am having a good day with minor bumps and can walk....4 miles of friction and sweat would put me in a terrible place the next day. What do you all suggest? I read this forum every day and everyone is so helpful and supportive. I hate that we all are going through this but I am glad we have each other to lean on.
Thanks for listening!
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