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i have had PHN for a year now. I was mis-diagnosed at the early stage with a sinus infection. 5 days later I went to the emergency room and the doctor said I had shingles. I was having terrible headaches at the same time. I could not open my left eye and my forehead had the lesions.
A week later my primary Doctor recommended an MRI for the headaches. The MRI showed an abbess on my right occipital lobe. Two days later I had emergency surgery. My brain showed some bleeds and an abbess.
the next morning my eye opened up. This was July 27, 2015.
Anyway, I took some time off of work. After each follow up with the neurologist and surgeon my intent was always to get back to work.
not knowing how long my brain and my shingles needed to heal. I was laid off in November 2015. I am healed from the brain surgery, but the PHN has not changed. I take Lyrica 100 mg. 3 x a day. I cut in half a dose of nucynta 2 x a day. These do calm my nerves but make me sleepy. I take nortriptyline at night.
This has been so frustrating. It has changed my life. Any stress sets me off into a itching episode on my eye brow and head.
My neurologist suggested that I try working part time, or volunteering. My SDI has run out and my long term disability is wanting to cut my benefits. My PHN is not better. So I really don't know how I could go back to work. I just want to know how y'all handled your work and home life obligations?
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