How do you carry on?

Posted , 4 users are following.

My migraines have now got me housebound, I think mainly with fear. I'm constantly looking for an aura or waiting for the dizzy spell. Mine are chronic and severe so I need to learn to function with them but it's not easy when your legs won't work.

I'm scared all the time because I cant take triptans so nothing helps the pain. Every preventative has failed and left me with awful side effects even after stopping them.

Does anyone have any practical advice. Please!

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4 Replies

  • Posted

    Hi Tracy,

    I have been suffering for about 40 of my 52 years, I have tried everything and everyone in the hope a cure will be found and I have come up with nothing and come to the conclusion that the health profession just doesn't care.

    I'm lucky that I can take triptans and take about 10 a month, which is way too many, but I don't fancy taking them for another 40 years.

    I decided to get an intolerance test done, I had one about 13 years ago and used a different company 2nd time round, to be sure that the results would be accurate.

    Both tests came up with a few results but the 2 main ones in both tests were gluten and dairy. They recommend excluding all the foods for 6 weeks, then introduce each item gradually so you have to be really strict with yourself. I have now gone 2 weeks without an attack.

    I'm not saying it'll work for you, but it's worth getting a test done, it was my last resort and I'm hoping upon hope that it works. I believe it's the dairy for me, rather than the gluten.

    I hope you find a way through it soon, you're not on your own.

    Good luck

    YL

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    • Posted

      Thanks for the reply. I'm afraid I've done the food thing. I don't do dairy, gluten,eggs, caffeine, citrus, sugar, processed foods etc.

      I am menopausal so hormones are the problem.

      I've just lost the will to carry on, it's so hard.

      Fear is my biggest enemy.

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  • Posted

    hi tracy

    my 15yo daughter is in the same position as you. she has had migraines 24/7 for 3yrs and is allergic to all triptans and has the opposite effect with other pain relief, so she goes it alone. specialists, neurologists, paediatricians either haven't believed her or don't know what to do. i have exhausted all options so she just has to ride it out by herself. in the last 8months or so, the migraines have now become vestibular migraines. i don't know how she does it but she's one tough young lady. she sees a psychiatrist who believes her and is very proud at how far she's come in managing on her own. at this stage, there doesn't seem to be an answer for why she still has them other than 'the wires in her head are just not connected'.

    i wish you all the very best and understand that you are not alone.

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