How do you get people to understand what is happening?

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4 months ago I was hit repeatedly in the head and sustained a concussion. Head is always hazy and foggy and have no sence of balance. Everyone says including Dr. That it should have cleared up by now and I understand this but it hasnt. What do I do now, where do I turn for help. I want my life back.

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  • Posted

    That's so sad but rather sorry to say if you have post concussion syndrome it can take years. Try and get a title / diagnosis for what you have and then you can look into it. My daughter had PCS after a RTA on her horse six years ago. She has a permanent headache of varying degrees even now. She was left with headaches, we eventually found someone who specialises in them which helped quite a lot but without proper diagnosis where do you start. There's Bowen therapy which is very good but as I said it is early days and the brain takes a long time to repair. Could look up what boxer's do for help but four months is nothing and very surprised yr gp thinks it should have cleared up, see a different GP who is more experienced if I were you. Good luck
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    • Posted

      Have been diagnosed with post concussion syndrome. I like everybody else have been under the assumption that a concussion would last a few days to a week or so. Never dreamed 4 months would go by and I am in the same condition. I am missing alot of work and am beginning to worry if I will have a job by the time I am able to return. I am alone and am the only source of income. Depression is beginning to set in and am getting more frustrated as the days go by. I can't seem to make anybody understand what is going on inside my head. I look fine on the outside so to have to listen to friends and family say ...... well that should be gone by now .... really hurts my feelings as if I am lieing about it because they can't hear the noise inside my head. MISERABLE.
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    • Posted

      I can't imagine what you are going through. I don't think I have ever heard of a concussion having a time or grace period. That's why I hear about all of these athletes who are getting injured and diagnosed with concussions. Which should going way back to the persons injury and I can tell you that the impact on these people with head injuries are lastong longer than anything I'm hearing you say. I can assure you I understand what you mean by looking as though every thing is fine but knowing inside we are not feeling too well. It's a frustrating situation, I just believe that their are better doctors out there who are more than likely able to get to the matter of your concerns if you are able to find them. I have seen over 16 different doctors in two years and I have never seen so many people have completely different outlooks on the same documentation or pathology reports when I have been out to get other opinions. Luckily, I have the best team in Atlanta and they have not given up on my own issue. Keep the work of getting a really great physician. I hope you keep your head held high and do not let anyone tell you otherwise.
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  • Posted

    I highly suggest you see a neurologist and have AN MRI with and without contrast (gadolinium contrast ).
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    • Posted

      Thank you for your reply. I have had a CT , and MRI. Both showed nothing so I thought GREAT, not so great. All that proved was that nothing was broken or bleeding so nothing to do but wait for brain to heal itself. I never dreamed that it should go on this long. I have heard of others getting a concussion and in a matter of days or maybe a week or two but this long. In the past month month 1/2 I have been getting more and sever headachs. Am at witty end.
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    • Posted

      EEG is a possibility for testing. As well as a spect scan it think. Read more into those if you want. But usually the two the CT scan and MRI is the best tests to have to rule out abnormalities. I hope you have a good night. I'm not sure of all symptoms but you can share with me if you'd like bc I have been in the field of medicine and diagnostic testing and have friends who are Doctors and nurses. Let me know if you want.
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    • Posted

      I was a nurse and am married to a doctor but it doesn't make any difference. Everyone is different and feels things in different ways. I'm afraid you won't make people understand but you might find a site for people who have suffered. Word of mouth is useful as one just has to try everything. Locally here there is a chap who specialises in headaches. Might be worth seeing if one near you. There are injections you can have into yr head too. They have varying degrees of success but could be worth trying. There's no doubt it's a form of hell but keeping researching. Hope you resist the temptation to keep taking paracetamol.
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