How do you know when you’re getting better ?

Posted , 4 users are following.

Today I don’t feel as exhausted and only took me 2 hours to get out of bed not 4 🤣 

I do feel really ‘weird’ though like spacey and not in my own body .... wondered if it’s all the herbs attacking this virus  or just another symptom 

0 likes, 12 replies

12 Replies

  • Posted

    The spaced out feeling is common....I would say for me it's the one thatvhas lingered the most. Mine did actually disappear about 2 months ago, but it has come back Monday just gone...I had a dreadful day and had to take time off work. It has set me back a bit, but seems to have eased up a bit. I'm 7 months into this virus. On Monday I did try to go into work an hour earlier and not sure if that had thrown me up, or was it because I had a busy weekend. Frustrating as everyone has been telling me I'm seem better and more myself...although I didn't feel better. So now feels like I've gone back a month to where I was before.

    • Posted

      Yes that’s what scares me .... do we have to tread carefully for the rest of our lives ? Not pushing ourselves ever and  what about travelling or a night out ? 

      I think I’ll be scared for the rest of my life after this horrific time ! 

  • Posted

    Hi Lori,

    I had that kind of spaced out feeling during the virus a lot. It's so hard to describe, but I remember feeling kind of 'stunted' as though I just didn't feel well and knew I wasn't right but couldn't put my finger on exactly in what way or how to describe it to anyone. This feeling definitely gets better and goes away as recovery happens, and it is going to happen for you I still believe that. 

    So sorry that you've been having such a hard time getting out of bed, it is understandable with the fatigue and exhaustion. Hoping and praying for a turning point for you soon Lori, your messages are so heartfelt and I know words can't describe the experience and emotions and feelings you have been going through, especially when doctors are not helpful and don't give the right information (i.e. saying that they won't know if or when you will recover, when absolutely you will and it is not going to take years). 

    Remember message any time and be kind and understanding to yourself - none of this is your fault and remember it's okay to take a step back and rest and say 'okay things may not be great today, but it's not always going to be this way' - and it's not Lori, it really isn't.

    Craig

    • Posted

      You’ve given me hope Craig and I believe in power of mind .... I have made things happen before by just wishing and really believing .

      I’m just mad at myself for working out like a maniac for 6 months when if I had a diagnosis could have rested . But it’s on the past now and have to live in the present and just do the best I can ! Now ! 

    • Posted

      Thanks Lori it's hard to feel hope and optimism when going through the valley with this thing, I know only too well. Yes the mind is a powerful tool, most importantly in terms of attitude and belief, but remember sometimes with this it's just a time factor too and patience is often the key as much as anything.

      Definitely don't be mad at yourself, you absolutely didn't do anything wrong and won't have made this virus or recovery time any worse or longer because you have still been working on. It's just amazing you've been able to do that at all, and as you say if only you had known earlier you could have taken rest but key thing is what you know now and living in the present as you say!

      Craig

  • Posted

    Yes, thats spacey feeling is a nightmare. I have been feeling like that for the last couple of days. Mine comes and goes. I also have an increase in floaters today and tingling in my feet. 

    I also sometimes find even positive things like too much excitement makes me crash. Maybe it is using too much energy. I am going on holiday in a week's time for a few days and am hoping I can manage the 6 days away without feeling feeling like this.

    • Posted

      Well I certainly hope you can make it ! You just need to pace yourself not go crazy ... rest when you can .

      I had to cancel a trip to Europe in June and so glad I did now ... I tried to pull myself together and start packing ... thinking it’s all in the mind but I just didn’t feel well unpacked and canceled . 

    • Posted

      Hi lori,

      Oh you poor thing - sorry you had to cancel your hols. I am definitely going :-). I will just try to have some rest in between sight seeing. I will be flying to NYC in a week's time for 5 nights. It's a belated birthday present. When I get back from NYC I will have 2.5 days at home before going back to work.

      As sick as I have been over the past 13.5 mos, I have not cancelled any holidays. I have done 5 nights in Menorca last Sept, 2.5 weeks in Jamaica over Xmas/New Year, 2 weeks in Canada over Easter and 1 week in the Swiss Alps in early August. I can't say any of them were the most enjoyable of holidays though but quite frankly because I was lead to believe all this illness was in my head, I just tried to carry on as normal as possible even when I was slowly dying inside. 

      I have one more week's holiday to use before the end of this year and I think I will take that and just rest at home and have a Netflix binge.

    • Posted

      Wow ! You’re doing so much better than me ! I was driven to a natural dr who’s amazing 5 hours away only stayed overnight but it set me back 2 weeks!  Just that one little trip !

      After being holed up in this house for 6 months it was so nice at the resort we stayed at in Santa Barbara so warm and alive with people and just to sleep in a different bed .... felt like I was in heaven ! 

    • Posted

      It’s great that you are able to go on holiday Kay. I wouldn’t have been able to manage that either when going through this Lori, everyone just has their own things and levels they can manage, I know I struggled to do most things! 
    • Posted

      Craig, trust me some of the holidays I had were not fun. For instance the 2.5 weeks in jamaica last Xmas/New Year was mostly spent in bed. The insomnia and the depression was horrible then. 

    • Posted

      Hoping this can be a much better holiday for you Kay, those times that are supposed to the best of times can be the worst of times when feeling unwell I can imagine - thinking of you. 

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