How fast can Endometriosis come back?

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New here and hoping for insight/support. I won't go too far back, but always had horrendous periods until I went on the pill at the age of 18. No complaints...periods were manageable and cramps would subside with ibuprofen. 10 years later, went off the pill to try to have a child. Had my daughter a year later. 2 years later I had a miscarriage/dnc and then became pregnant with my son 2 months later. Fast forward...had IUD, no relief from pain and periods. Starting having intense bloating/pain/pressure on my upper left side. Been to chiropractor, GP, Gastronologist, Endocrinologist, Naturopath doctor. Many blood draws, ultrasounds, ct scans, xrays. Had laparoscopy 3 years ago...found mild endo and a few fibroids, which they removed. Week later had thermal ablasion, as I have a weird shaped antoverted uterus. Things have gone downhill since and the past 6 months are unbearable.

I was bleeding for 10 to 12 days straight. Sharp upper left pain followed by gushes of blood that would leave me on the floor in tears. Bowel/urinary problems. Fevers. Sinus pain/pressure. Feeling and looking 6 months pregnant. Told I had estrogen dominance, low vitamin D, high prolactin levels and various other abnormal bloodwork. Saw new Gyno last week and have u/s in 2 weeks. Ultrasound will not show endo, correct? I feel as though my entire left side is being strangled. I get sharp pains in my belly button, pain in my groin that radiates down my leg. Insomnia. I am just tired of feeling sick.

Soooooooo...what are the chances that in 3 years the endo has returned and taken over my body? 😯

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2 Replies

  • Posted

    I don't know what the chances are but am sorry to say that it's not impossible. Ultrasounds are not reliable for endo. Can you get another lap any time soon?

  • Posted

    Hi yes it's possible my endo came back 16 years after a total hystorectomy...been on hrt since as I was only 36...it's co me back attached to my bowel.just changed patches to progesterone and oestrogen which I'm told should stop it growing back.

    you need a laparoscopy to be sure.

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