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how i cope with bronchiectasis

Posted , 9 users are following.

amanda36284
amanda36284

Hi all ive been suffering with the illness since the age of 10, im now 42, its on both of my lungs, i had  just over half my left lung removed in 1991,Im on nebuliser and tablet antibiotics, inhalers,the advice i can give to others is take up light exercise, drink plenty of water, try eat healthy if u can,in the early days i was really ill with it, but ive had so long now i know when to rest, it does knock the stuffing out of u, i live with a wheeze everyday but seems worse when i have an infection, only certain antibiotics help depending on what type of infection, plz feel free to reply id love to hear from u all takecare

6 likes, 26 replies

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  • Mysticzam
    Mysticzam amanda36284

    Posted

    Thank you for words of hope with this I've had a bad wheeze for 3 weeks now. I'm wish I knew how to battle the tiredness any suggestions? Thank you
  • Operalyn
    Operalyn amanda36284

    Posted

    Regarding singing I have joined Rock Choir. I love it!!!!!!!! I have sung and recorded in Abbey Road studios and sung in the NEC arena and all sorts of local events. Best of all I sing at the weekly rehearsals with my friends. It helps my breathing and opens up my chest but most important it makes me happy. I sometimes cheat and mime the long notes but my singing has improved a bit. I don't have a great voice - it's an everybody's choir but we sound good all together.

    I can't dance the night away but I still bop round the kitchen!

    I have wheezed all summer. I wonder if it's pollen?

    Tiredness is something I live with. I get rest when I can but apart from that if you have had this all your life you don't know any better. Sometimes I get a brilliant day with high energy but otherwise I just slog on.

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