How ill do you feel ?

Posted , 5 users are following.

Hi all

I've been unwell for several months doctors have told me my folic acid is unreadable it's so low and ferritin is at 4 I've had b12 injections for several years an it's above what it should be now

I can't take iron tablets they make me very ill and turn me yellow

How do you all feel what symptoms do u have ?

All my doc said was my thyroid an period was effecting it an try to eat more green veg an red meat I am jus looking for some reassurance my symptoms are from being deficient

Thanks all x

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15 Replies

  • Posted

    are you taking folate, maybe you need infection more often have you been on the facebook page for PA x
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  • Posted

    If you look at the Pernicious Anaemia Society website you can find a full symptom list. If you are low in iron, then you may not be able to use the B12 injections properly. Meaning you have a good level in your blood, but it isn't reaching your cells.

    There are gentler forms of iron than tablets, I believe there are sachets of ferrous fumerate. Some people who are sensitive to taking iron, find these are OK. Have a search on the Internet, or go back to your GP for more help.

    Do you have an underactive thyroid too, and is it being treated by your GP?

    My symptoms were severe tiredness, to the point of exhaustion. Aches and pains in my joints, burning sensations on my skin, numbness and pins and needles. Foggy brain, unable to think of names of things, or have coherent thoughts. Also loss of balance, shoulder bumping walls etc....Marion

    Emis Moderator comment: I have removed product/company names as we do not allow repeated posting of these in the forums. If users wish to exchange these details please use the Private Message service.

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  • Posted

    You need the folic and ferritin to actually make the b12 injections work properly. It is possible that you have used up these stores with the time you have been having the b12.

    look at the pernicious anemea society site - it might be of use to you. There is much information within it.

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  • Posted

    I'm sorry Samantha, my comment has been held back by the moderator, as I was recommending a gentler form of iron for you to take. I also suggested you look at the Pernicious Anaemia Society website for more information. They can offer advice on all reasons for low B12, not just Pernicious Anaemia.

    My symptoms were extreme fatigue (exhaustion), burning skin, aches & pains, foggy brain, loss of balance, numbness & pins and needles.


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    • Posted

      Thank u so much

      I have just joined a group on Facebook it seems very helpful

      It seems that symptoms are varied an wide spread but doctors don't take it very seriously

      I'm hating these symptoms at the moment especially the fuzzy eyes an anxiety

      Thank u again for replying x

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  • Posted

    Hi. I too have been taking cyanocobamin shots monthly for 2 years because of positive intrinsic factor antibody and ferritin Was at lowest was a 6. I had a historectomy because of iron deficiency anemia and felt better. Still had fatigue with stress and exercise, depression And pain in spine pelvic floor and legs. My b12 level was 350 though which according to some is gray zone. I asked for hrdroxycobalamin injection's when nearological symptoms came. And also asked for foliate not folic acid and feel much better. I have parathyroid disease too and thyroid nodules. My daughters have autoimmune thyroiditis also known as hashimotos. Still trying to figure out the continued weird walking, but double blurred vision is now minimal and vertigo is gone. They took me off hydroxocobalimin because b12 is above normal now. Hope this helps.
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