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How ill do you feel ?

Posted , 5 users are following.

samantha40494
samantha40494

Hi all

I've been unwell for several months doctors have told me my folic acid is unreadable it's so low and ferritin is at 4 I've had b12 injections for several years an it's above what it should be now

I can't take iron tablets they make me very ill and turn me yellow

How do you all feel what symptoms do u have ?

All my doc said was my thyroid an period was effecting it an try to eat more green veg an red meat I am jus looking for some reassurance my symptoms are from being deficient

Thanks all x

0 likes, 15 replies

15 Replies

  • jazzyanne
    jazzyanne samantha40494

    Posted

    are you taking folate, maybe you need infection more often have you been on the facebook page for PA x
    • samantha40494
      samantha40494 jazzyanne

      Posted

      I'm starting folic acid today I feel worse around my period I literally can't stop sleeping lol what is the Facebook page thank u for replying x
    • samantha40494
      samantha40494 jazzyanne

      Posted

      My b12 is fine in fact it's above what it should be now

      I'm having bloods taken tues as they can't understand why it's dipping so low xx

  • marion29181
    marion29181 samantha40494

    Posted

    If you look at the Pernicious Anaemia Society website you can find a full symptom list. If you are low in iron, then you may not be able to use the B12 injections properly. Meaning you have a good level in your blood, but it isn't reaching your cells.

    There are gentler forms of iron than tablets, I believe there are sachets of ferrous fumerate. Some people who are sensitive to taking iron, find these are OK. Have a search on the Internet, or go back to your GP for more help.

    Do you have an underactive thyroid too, and is it being treated by your GP?

    My symptoms were severe tiredness, to the point of exhaustion. Aches and pains in my joints, burning sensations on my skin, numbness and pins and needles. Foggy brain, unable to think of names of things, or have coherent thoughts. Also loss of balance, shoulder bumping walls etc....Marion

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  • lisahelen
    lisahelen samantha40494

    Posted

    You need the folic and ferritin to actually make the b12 injections work properly. It is possible that you have used up these stores with the time you have been having the b12.

    look at the pernicious anemea society site - it might be of use to you. There is much information within it.

    • samantha40494
      samantha40494 lisahelen

      Posted

      Thank u for the reply

      Is that what I have ? My doctor was very unworried an brushed me off I really just want some answers if that's why I feel so ill all the time

      It seems everyone focuses on thyroid or anxiety lol

    • samantha40494
      samantha40494

      Posted

      Also the b12 is high now and I've noticed after a injection I become quite ill could this be why ?
  • lisahelen
    lisahelen samantha40494

    Posted

    Could be a connection. Do take a look through health unlocked site it might give you some answers and is frequently used by fellow sufferers.
    • samantha40494
      samantha40494 lisahelen

      Posted

      Thank you I am a member of health unlocked I keep forgetting log in lol I will take a look I did join a site today which has so far been helpful

      Thank you for helping

  • marion29181
    marion29181 samantha40494

    Posted

    I'm sorry Samantha, my comment has been held back by the moderator, as I was recommending a gentler form of iron for you to take. I also suggested you look at the Pernicious Anaemia Society website for more information. They can offer advice on all reasons for low B12, not just Pernicious Anaemia.

    My symptoms were extreme fatigue (exhaustion), burning skin, aches & pains, foggy brain, loss of balance, numbness & pins and needles.

    Marion

    • samantha40494
      samantha40494 marion29181

      Posted

      Thank u so much

      I have just joined a group on Facebook it seems very helpful

      It seems that symptoms are varied an wide spread but doctors don't take it very seriously

      I'm hating these symptoms at the moment especially the fuzzy eyes an anxiety

      Thank u again for replying x

  • debbie_bje15199
    debbie_bje15199 samantha40494

    Posted

    Hi. I too have been taking cyanocobamin shots monthly for 2 years because of positive intrinsic factor antibody and ferritin Was at lowest was a 6. I had a historectomy because of iron deficiency anemia and felt better. Still had fatigue with stress and exercise, depression And pain in spine pelvic floor and legs. My b12 level was 350 though which according to some is gray zone. I asked for hrdroxycobalamin injection's when nearological symptoms came. And also asked for foliate not folic acid and feel much better. I have parathyroid disease too and thyroid nodules. My daughters have autoimmune thyroiditis also known as hashimotos. Still trying to figure out the continued weird walking, but double blurred vision is now minimal and vertigo is gone. They took me off hydroxocobalimin because b12 is above normal now. Hope this helps.
    • samantha40494
      samantha40494 debbie_bje15199

      Posted

      Thank you that does help

      I'm hoping that a blood test will tell me exactly what is going on so I'm hoping to be able to post results very soon

      I hate the blurry vision an anxiety at the moment

      I really need a better doctor I think

      Thank u so much for the help and I'm glad ur getting a little better x

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