How is eveyone

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I havent seen anyone post in awhile. Wanted to see if everyone was doing. If anyones off of blood thinners?

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14 Replies

  • Posted

    Working on the principle of "no news is good news", hopefully no posts means no need to post smile 

    I am still on thinners (warfarin) but do seem to be getting more accustomed to it. 

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  • Posted

    No, still on them every day. Same ole same ole. Nothing ever changes. I asked my heart Dr if I could fly and he said yes blood clot is from lack of movement. I think I need second opinion before I just take off across country.
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  • Posted

    hi samantha

    its 14 month since i had my PE and i was off blood thinners after 6 months, all well apart from oasopheal reflux caused by riveroxaban, im assuming they have done this has i was not having this before im hoping it clears up its a bit uncomfortable, how are you?

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    • Posted

      Im doing ok. Been off blood thinners since may. Still alittle nervious i may get another pe. I had a ct scan about 3 weeks ago and it was clear. I habe another follow up ct scan in August. Hope they stay gone. Was yours provoked or unprovoked?
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    • Posted

      hi think it was HRT had a load of investigations and all Normal so only thing it could have been really.
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  • Posted

    Still on lifelong warfarin. Tried apixaban and not good on it, nausea tiredness.  Have those on warfarin but inr keeps my mind happier.  Just want rid of nausea, anyone else get it?
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  • Posted

    I was only diagnosed 2 weeks ago still on injections go back on Friday to go onto tablets! Bit nervous incase they don't work

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    • Posted

      Hi Daisy,

      Don't worry. Of all of the things that may be said about anticoagulants - the one thing about them for sure is that they do work.

      That said, suddenly getting pe's is quite a shock, so don't be afraid to ask for help or advice. 

      All the best

      Peter

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  • Posted

    hey how is every1 doing . I had a pulmonary embolism in march and have been on waffarin since then.i just found out i will have to b on it for life.

    do i need to go on to a special diet? and what are the side effects of the medication besides bleeding alot.i also noticed iv been picking up weight is this normal?

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    • Posted

      Hi Sabi,

      I too am on it for life and have been on it for a year or so.  My experience has been that, over time, the warfarin side effects seem to reduce. Not seen weight gain (although I have always been skinny). There is not a special diet as such, just need to not make dramatic changes. i.e. yu can eat as much greens as you like, as long as you eat them at the same rate. If you suddenly eat less, your inr will rise.

      There seem to be a lot of myths and anecdotes about warfarin. I have found many to be false. I was told "no alcohol"  but later found that not to be true, just take it in moderation and again, no big variances (just like foods). Main thing that does have an effect on warfarin is other drugs. There are some interactions, so always check with your GP. You can find out about interactions online too.

      HTH

      Peter

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    • Posted

      I was stable on warfarin and got used to having it but got the norovirus which has left me with daily runs and ibs.  Hey cannot stabilise the warfarin as my diet is so up and down with nausea alternating with diarrhoea.  How on earth can i normalise this when tomach problems occur
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  • Posted

    I am still on warfarin and very depressed.  I would,like to hear from anyone else who has this.  Did you get any replies about this being a problem after p.e. And warfarin?
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    • Posted

      When i had my pe i was on eliquis and super depressed. I think iys just the thought of having it that makes us depressed.
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  • Posted

    Hi all, Im still on Warfarin since 2016 May..... Im only 34, so I want to change to another , which is Nattokinase. Have you ever heard about it? I've got a scar tissued clot in my lung, and the Warfarin does not dissolve it. I had lots of search about Nattokinase, Im waiting an answer from a Japanese doctor, who know Nattokinase. This product can dissolve it.

    Sorry, my english is not the best.

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