Posted , 4 users are following.
Hi,
Just wondered how long dermovate took to work? I'd been using it for 2 weeks but no relief and so something else was suggested. Just wondered if it took longer to get things under control. Am getting no relief and in lots of pain.
Thanks
0 likes, 4 replies
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Wee_Dugie joanne25205
Posted
Hello Joanne, first of all I am really sorry no one has responded on this up to now. This is a very helpful forum for sufferers of the condition Lichen Sclerosus (LS) and the largest majority of these sufferers are Female. Women such as Nancy KB and Starlight8 have previously posted extremely helpful information on this forum regarding the causes and practical steps to take to deal with the condition. I wonder therefore, if you are aware of the critical importance of dietary control, and in many instances, radical change if food intake? (I can post details on how you can get to that information - just let me know?)
So for you specifically, unfortunately, everyone is an individual case - and this is why what works for some sufferers does not have the same impact for everyone. Before I go any further I must say that I am a Male who has been dealing with LS for almost 8 years and I have used Dermovate to successfully deal with my infected skin areas.
So, we need to know about you: have you been diagnosed with LS by a medical Biopsy as this is the only way to conform the presence or absence of the condition? If so, when was this and have you used any other medication to deal with your symptoms? Do you know when you first noticed something was not quite right? Many women simply cannot ignore the desire to scratch the area that is initially causing the annoyance and irritation, so you may have been doing this for quite some time before actually acknowledging something was far from being as it should?
In terms of the treatment you have now, ANY Steroidal ointment will ONLY be successful if you correctly apply it sufficiently frequently enough to all the infected skin areas. This obviously requires that you are familiar with all your Lady parts that the condition you have is effecting, otherwise you could be applying it in some infected areas, and the areas you have not properly treated, or have not got to at all could still be causing the severe irritation you are experiencing.
You also say " and so something else was suggested " - what do you mean by this?
If you can answer the questions I ask we can start to make progress with what you have going on at the moment .....
joanne25205 Wee_Dugie
Posted
Hi, thanks for the reply.
With regards to diet, i'm pretty healthy anyway. No alcohol, no sugar, limited dairy. My vitamin D and B12 are normal. I supplement with zinc and magnesium. So don't know what else there is really.
I can't have a biopsy for reasons i don't want to go into but its completely out of the question. I have herpes and i went for a check up at the clinic and the consultant said that what i had thought was an outbreak was in fact LS. He swabbed the area and sure enough it came back negative. He gave me a leaflet about LS and the dermovate and told me to come back in a month. It was a complete shock as it wasn't really bothering me and so i didn't use the dermovate then, Then a couple of months later it escalated. I used the dermovate as instructed but no difference. I then saw a dermatologist. Hes a professor so i hoped he would know for sure. He said my skin was definitely behaving like LS. Its not itchy at all but splits and has red raw patches. He said it could also be lichen planus or simplex but more than likely LS. He suggested a different approach and to try protopic twice a day to control it and the zinc oxide to maintain it. Am proceeding with caution because he did warn me it causes a warming sensation so not keen on applying it to raw skin as i am very sensitive. Now i have recurring thrush just to make life worse and that's where im currently at.
This forum is really good. I'm very grateful to people taking the time to reply.
Wee_Dugie joanne25205
Posted
Hi Joanne, thanks for keeping the continuity of posts going by responding to this. With all the responses you have now received to your other Forum post you have received lots of great advice from other Lady LS sufferers.
I think Guppy is right in saying get the Thrush out of the way, then find a treatment regime in place that is going to get your LS under control - and if not, you know where to come to post a fresh forum message! Just to add briefly, I really thought it was unusual for you to receive no replies to this Forum post here - I think the problem is with the patient.info.forums site rather than anything else .....
Guppy007 joanne25205
Posted
Hi Joanne, I haven't been getting posts and so I didnt see this one. I think I commented on your other post re thrush? I think you have to try to get the thrush under control first as that must be aggravating your LS, and as I mentioned the two go hand in hand which is probably why you are in such awful discomfort.
I would try to find a Vulva clinic if you can as the doctors there tend to be more experienced with LS, and in fact, you may be able to get a firm visual diagnosis from them rather than worrying about a biopsy. I had a visual diagnosis which is actually quite common but many women are frightened when they hear words like 'cancer' being mentioned by doctors that arent that well informed, and so they end up having a biopsy when most of the time it is unnecessary.
With regard to the Clob cream I would stop using it for now and any other cream that is hurting, as I think you have to first get the thrush under control and then you could maybe try the different cream that has been suggested. Remember to bathe frequently in a Spitz bath as that often helps.