How long does it take to recover from acute pancreatitis?
Posted , 50 users are following.
Hi I was wondering how long it takes to recover from acute pancreatitis? It started when I was at work just over 3wks ago, I got the most excusiating pain in the upper left side of my abdomen, going into my back (the exact same pain I used to encounter when I had gallstones nearly 10 years ago, but I knew it couldn't be that, as I had my gallbladder removed.) my colleague took me to the walk in centre, where I had bloods taken and given buscopan tablets and sent home. Later that night the walk in centre rang to tell me I had pancreatitis, and that I should see my GP in the morning. I went to see my GP, she was puzzled why I hadn't already been admitted to hospital, she then arranged for me to go straight on to a ward. I was kept in for 4 days, nil by mouth on a drip, on lots of painkillers and I was given a X-ray and ultrasound scan. I was discharged and was sent home to rest, they said I would need to go back as a outpatient for a MRI, a camera test and a mrcp test. I got a sick note from my GP for 2wks, so thought I'd be ok by now? I was due to return to work yesterday, but still don't feel well, so my doctor has given me another note for 2wks. I still haven't heard from the hospital re tests, I just wondered is it normal to still be in some pain, I am also very tired? I know I shouldn't worry but I am worried about returning to work, my boss and her boss are coming to my house on Friday to discuss my attendance as it is procedure, it really is making me very anxious, I just want to get better.
0 likes, 99 replies
TimmyA Booboolamore
Posted
I had recently been cheating on the diet and eating lots of chocolate and peanut butter cups due to my kids big score on Halloween. My doctor thinks that is what triggered this. For now it's no treats and I'm also doing a low fat diet just to be cautious. That's the tough part, I love cheese! And chocolate and peanut butter!
genna07944 TimmyA
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stephanie37007 Booboolamore
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robin0 stephanie37007
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CLPenk stephanie37007
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Did they ever detirmine the cause? Or were you another ideopathic case? I just went in the hospital for 2 weeks, and I'm a healthy 6'4" 250 (now 230) lb 24 year old. I have excellent doctors here in Wisconsin and am very well connected through my wife's family, so I hope to have some good info to contribute soon. I'm hoping to make mine a once than done episode. Still recovering now three weeks later, I hate feeling weak.
Cristinajersey stephanie37007
Posted
Hi Stephanie,
I'm just finding this site/post. I was just in e.r. for what felt like I was having a gallbladder attack...thing is...they took it out 2-1/2 years ago! Same type pain though in the middle of my chest, just under/between ribs and radiated up to my shoulder. They ended up doing a ct scan, chest x-ray and blood work. My blood work all came back good with only thing slightly high, my lipase (sp) at 404. They said over 500 is considered pancreatitis, so they said I have mild pancreatitis. Didn't really give me any instructions, other than to drink a lot, eat mild diet and that was it. Didn't even make it seem like it was a big deal. So I went to see my regular doctor the next day and she feels from what I described, that I had a stone stuck in my biliary track/duct and that it caused the mild pancreatitis. It makes sense, since for me, the pain went away under my ribs about 45 mins later, which my doc says that pancreatitis pain won't just go away. I don't feel great though and even though I'm not really in "pain"...I know my pancreas isn't happy. I don't smoke, I'm a vegetarian, eat low fat and healthy (much of it organic) and don't drink (I will RARELY have a drink on a special occasion). I was also asked if I take any medications...which only thing I ever take is Excedrin. I do take them often, but my doc says once a day or so isn't a concern. Sooo...my doc feels it's stones still forming and went into my bile duct. I started reading things online and got so discouraged because it seems most continue to have issues, although, most seem to have had a bad episode. I can't seem to find anyone that has had mild pancreatitis, but sounds like you might have had a similar experience to me. Glad to hear you're feeling better now and back to normal. How long would you say it took you to feel better?
jazzyj1547 Cristinajersey
Posted
Oh my goodness this is the exact same thing that happen to me. My episode happened on Friday and the pain lasted all of maybe 30 min. I went to the hospital and they did ultra sound took blood test urine ect. When they sent me from my ultrasound they said I didn't have any stones hiding anywhere. The only difference is I had my gallbladder removed 5 years ago and I just had a baby 3 months ago. If you find out anything different please let me know because I am so confused.
janet69451 Booboolamore
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robin0 janet69451
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And what level of attack?
You need to stick on the 5% per 100g diet and four small meals a day means the pancreas works less.
Also the old avoid fat alcohol etc. Soup is good and biscuit.
As for the pain unfortunately the damage is done and its now about pain management and learning your limitations. I suffered my last attack 16 months ago and I am still in pain and I have other issues that have come on as a result of the attack. In my case I nearly died. Please feel free to ask anything as we all understand where people who haven't don't. You are not alone
lyn_05326 janet69451
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janet69451 lyn_05326
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after 6 months and the third GI doctor I am finally better the third GI doc says it will take a year to get over this and I have to take the enyzmes for a year having a EUS Monday to look at my sphincter of oddi to see if that is giving me trouble
janet69451 Booboolamore
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Terri123 Booboolamore
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I've learned much - most important - do not let *anyone* touch your pancreas or do a procedure unless you are at a nationally recognized center for pancreatic care. An ERCP by a generic Gastro, who will cite a 5% complication rate, will almost always cause problems. There is research that says pancreatic procedures like an ERCP by a non-pancreatic center can have complication rates at 40-60%. My severe bout was directly produced by the ERCP -- it took about 8 hours to develop.
Secondly - pancreatitis quickly overwhelms the ability of your GP or Gastro to understand or effectively manage. Work your insurance system or pay out of pocket to get in with a true expert in pancreatic care. It is a critical, lifestyle disease with nasty consequences if you don't follow best practices of care and lifestyle adjustments.
My recovery has been rigid adherence to the low-fat, low sugar diet. I need to adhere to both to keep pain at bay. My problems come when I eat out or otherwise fail to comply with both low fat and low raw sugar. I've also had to add complex starches (rice, potatoes) to provide energy. Lastly, I've learned to poach/drain or steam white fish or skinless chicken to convert lean meats to low fat. You can buy some products where that is already done. Like many - I've become a rabid reader of labels. I've pretty much moved to not eating things that don't have labels (i.e., no eating out unless it is salad with no dressing).
With the above approach, I've been blessed with low grade pain and sometimes a painfree day. It does seem, ever so slowly, to be getting better. The UCLA specialist said that 6-12 months, sometimes longer, can be anticipated for healing. And that is if I don't irritate it in that process. So it is a very long road.
One surgeon gave me an excellent nugget on their focus to find cause: surgeons are trained to find and fix. They need to discover a thing or a reason that causes the issue, and then they go in and fix it. So, idiopathic pancreatitis breaks their rules, and their training drives them to ascribe a cause. They go to alcohol due to the problem drinkers' proven propensity to not be fully truthful. But - as he said - it actually doesn't matter at this point. The treatment is going to be the same: low fat, low sugar, no alcohol, followup scans and bloodwork mostly to monitor for any conversion to a situation where surgery is required or cancer is detected. If the patient continues to drink, that will eventually play out -- but if you are the patient, stop drinking. If that proves hard, seek help for that as well! I love my glass of wine or a pint on weekends, but it has needed to stop. It makes me sad, but I'd rather be painfree.
The only thing about this disease that I can control is aggressive adherence to the diet, really good hydration (it helps!), and digging until I find an actual specialist with a clue *and* who works with me effectively. I actually travel about 5 hours to that person now that I have found them........which is really hard, but I want to invest in a life worth living for another 40 years (I am 50).
I did not really anticipate a sudden shift, out of the blue, to managing a serious disease. It has taken me a few months to realize that this isn't like a bad cold I will get over - this is likely going to need attention and care for a very long time, and if I am not aggressive up front, for life. So - while we all have to work to support ourselves, I do really assertively work to make all the little choices in my day (diet, stress, hydration) be really good ones for my health. And - when I shift my timeframe to the long haul for recovery, it helps!
Best of luck in your journey - and I am glad to have discovered this board.
Terri
cinder6977 Terri123
Posted
Hello Terri123,
I hope by this time you're feeling much better?
Im having issues and my GI wants to conduct a EUS. Should I allow this test to be done? Other then symptoms my blood work and scans all show to be normal. Any advice would be most appreciated .
Fenikobeats Booboolamore
Posted
My name is chris am from new jersey
I was admited to the ER a month ago for
Severe pain at first the doctors told me
They had to do blood test they told me
I had pancreatitis and they asked me if i
Was a heavy drinker i told him that i was.
Drinking 3 times a week for the past year
I believe thats the cause i was in the hospital
For 3 days after the third day they started
Giving me food till i got better i have no pain
No more but i.still feel bloated all the time
Even if i eat small amounts of food am waiting
For my new blood work results. Now i see people posting all their stories and thank you guys but
My question is does panceeatitis ever heal completely ? Has any body here heal yet?
Reading all this for me worried i just want
To be sure since i stoped drinking comepletely
Thank you for reading wish luck to everybody
linda58496 Fenikobeats
Posted
Good Luck to you!
Linda