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How long until remission??

Posted , 7 users are following.

christina91807
christina91807

Hi all, I was wondering how long it took for you to enter into remission after all of the horrific vertigo attacks? I really want to return to university but as it stands I can’t do anything. I was wondering if I could just wait until remission to do so? Thanks in advance 

0 likes, 31 replies

31 Replies

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  • paul01145
    paul01145 christina91807

    Posted

    Hiya Christina mine took a long time but then it was in remission for 15 years it's not easy love I hope you are feeling better soon x

    • paul01145
      paul01145 christina91807

      Posted

      Ye big style I don't leave the house now but it does not mean that will be the same for every one

  • sue94781
    sue94781 christina91807

    Posted

    Hi Christina, mine took about 6 months before it went into remission. I then had 3 years in remission (with the very occasional drop attack), before it flared up again
    • sue94781
      sue94781 christina91807

      Posted

      Back to GP and ENT. Waiting for intratympanic steroid jab at the moment
    • christina91807
      christina91807 sue94781

      Posted

      I hope the injections prove successful. Were you on betahistine before? I’ve heard it really helps. 
  • JMJ
    JMJ christina91807

    Posted

    Dear Christina,

    I think it varies for everyone and it depends upon if they’re receiving treatment, and what that treatment is.  Are you currently receiving treatment for MD?

    Sincerely,

    J-

    • christina91807
      christina91807 JMJ

      Posted

      Hello J,

      I started taking betahistine 16/x3 a week ago and I’m on stemetil too. Aside from that then nothing. I’m 21 and really hate the idea of the spells going away and coming back years later. Are you having treatment?

  • JMJ
    JMJ christina91807

    Posted

    Dear Christina, 

    I take a potassium sparing diuretic everyday, and I’ve receive intratympanic steroid injections about every 10 weeks (trying to work up to every 12).  They have successfully reduced the frequency and intensity of my vertigo, and have actually brought back a lot of my hearing and reduced my tinnitus.  I failed conservative treatment entirely, and steroid injections were the next step.  I’m perfectly content with the idea of needing an injection a few times a year in order to stay vertigo-free, so I’m sticking with this program until such day that it no longer works, or until I simply don’t need it anymore!  (RE: the latter...I can still dream! LOL!)

    I wish you all the best.  Take good care....

    J-

    • christina91807
      christina91807 JMJ

      Posted

      Thank you J, can I ask if your dizziness has ever been constant? That is what I’m currently experiencing, alongside attacks. I hope the injections continue to work!
    • JMJ
      JMJ christina91807

      Posted

      Hi Christina, 

      I responded to your question yesterday, but for some reason, it didn’t post.  I can’t figure it out!  This system seems to hate my iPad!

      Anyway, after my last episode of vertigo, I had an “endless Meniere’s hangover”.  The dizziness and lightheadedness, while not severe as during an actual Meniere’s attack, just never ended.  It’s worse when I climb stairs, or move my head or body a lot.  It goes away when I sit or lie down.  My doctor feels quite strongly that I have Vestibular Migraine along with MD.  He said that it’s not uncommon to have both.  Prior to this happening, I was trying to come off Klonopin which I’ve been on for many years. And I did it much too fast.   I also made some pretty radical changes to my diet.  So I’m adjusting the medications first.  And then if I don’t get results, I’ll try an elimination diet. 

      So yes, I’ve had chronic dizziness along with MD, but that’s been a fairly recent development.  Up until this started, I got perfect relief between steroid injections.

      I wish you all the best!

      J-

    • christina91807
      christina91807 JMJ

      Posted

      Hey JMJ,

      That’s exactly what I feel like now. Since an attack in October I’ve just been constantly dizzy. I’ve had attacks since then but the dizziness hasn’t let up. Thanks for persisting with your replies, how does it go away? I’m so sick of being dizzy. 

    • JMJ
      JMJ christina91807

      Posted

      Well, from what I understand, there’s no test to confirm Vestibular Migraine. It’s a matter of the doctor doing a careful history.  If you’ve had history of any typed of Migraine, that’s makes it more likely. There are medications that are common offenders (birth control pills, HRT, and some headache medications).  So first, they’d probably have you eliminate those, and see how you feel.  Next is a food elimation diet.  There are again, some very common offenders. And finally, if nothing works, there are antidepressant and anti-seizure medications that have been found to be effective.  

      It’s probably a good idea to have a conversation about this with your doctor, since Meniere’s isn’t characterized by never-ending dizziness.  There’s usually some dizziness during or for a while after an episode, but it typically resolves between attacks.  And again, it’s not uncommon for people to have both MD and Vestibular Migraine.  

      I’m so sorry you’re feeling so horrible!  I know exactly what it’s like to be dealing with the never-ending dizziness and light-headedness!!!

      Wishing you all the best!

      J-

       

    • christina91807
      christina91807 JMJ

      Posted

      Did you have a history of anything migraine related? I don’t and nor am I on any medication you listed. I’m just extremely confused by it all. Thanks for such a detailed response. Do you have menieres in one or both ears? I’ve recently started to get an all too familiar pain in my good ear and it’s really making me anxious. I’ll definitely take your advice and ask the balance clinic about vestibular migraine if I get the menieres diagnosis.
    • JMJ
      JMJ christina91807

      Posted

      Hi Christina,

      I completely understand your being confused by it all.  It’s an awful lot to take in, and the symptoms really can result in sensory overload (and anxiety overload!)

      Yes, I have a history of Migraine headaches beginning when I was quite young, but they all but disappeared once I went through menopause.

      I went through vestibular rehab and balance retraining after a particularly bad attack way back when all this started, and it was extremely helpful.  It was difficult at first, but it definitely paid off in a big way.  I wish you all the best with it!

      Sincerely,

      J

    • christina91807
      christina91807 JMJ

      Posted

      I think I’ll need some balance work done as I seem to be permanently off-kilter. My anxiety is through the roof with all of this, you’re right. Having a history of really bad emetophobia really doesn’t help this either. 

      Thank you for all the well wishes, they mean a lot. x

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