1. Community
  2. Gut, bowel and stomach
  3. Coeliac Disease

how many of you guys have had neg bloods and positive biopsies?

Posted , 5 users are following.

etalb11
etalb11

Basically the above - I have had a negative blood test and having endoscopy in march for biopsies - anyone else tested positive after negative blood results

Many thanks

Emma x

1 like, 8 replies

8 Replies

  • kaitlyn_82138
    kaitlyn_82138 etalb11

    Posted

    I have ! It's common ! Don't worry about it. If you have any questions about anything... just ask (: there's so many of us here willing to help you and anyone else ! we are all going through the same thing or.. Almost the same thing !!(: have a blessed day
  • amanda75990
    amanda75990 etalb11

    Posted

    it was the opposite with my son (age 11) His blood showed positive IvA and IgG antibodies, but when he was scoped it didnt show damage so coeliac ruled out (for now). Hope all goes well for you :-)
  • FA54321
    FA54321 etalb11

    Posted

    Yes, I had! It is quite common. I sometimes wonder why they bother with the blood tests as I've been told they are not very reliable.rolleyes
    • etalb11
      etalb11 FA54321

      Posted

      Ok this is good to hear - thank you. My gp has told me it's cut and dry with the blood test 😒
  • aveline
    aveline etalb11

    Posted

    In the US, they recommend both the blood work and the endoscopy/biopsy if there are questionable results. When one son was diagnosed and the other's blood tests were fine, that was the end of it. But, when mine came back fine with some vitamin deficiencies, I was told to go the distance with testing. Even the genetic tests aren't 100% reliable one way or the other.  But, that could help you, too.
  • etalb11
    etalb11

    Posted

    Hi again

    Thanks for the replies. I have my biopsy results on Thursday and I'm hoping for a positive so I can sort myself out- so much stomach pain this week. I was looking over my blood results and my blood test for celiec was 1 - so a definite negative. By I had given up bread by then and I don't eat pasta or anything as it disagrees with me. My pain has gone from left abdomen to all over my abdomen now and sometimes i feel sick too - just hoping they have done answers on Thursday x

    • aveline
      aveline etalb11

      Posted

      Thinking of you...any updates? Good Luck!
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.