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How many suffer with Hair loss

Posted , 5 users are following.

Brummiegirl70
Brummiegirl70

I've always been told the hair loss in my eyebrows was alepecia as a result of stress

Since I've been diagnosed & had a lot of descussions with some suffers I've since found out a lot of my symptoms are in fact due to having HH

I've always suffered hair loss in my eyebrows from time to time over the last few years

But due to my past personal circumstances my GP put it down to stress

It's only now after reading about HH I've realised it's one of the symptoms

1 like, 9 replies

9 Replies

  • haircrazydaisy
    haircrazydaisy Brummiegirl70

    Posted

    Yes, I have that symptom too. They don't grow back - do yours?

    • Brummiegirl70
      Brummiegirl70 haircrazydaisy

      Posted

      No 😓 so it would seem

      It's so frustrating & embarrassing

      It takes me ages in the mornings to do my make up because of my eyebrows

      I have hair down to my bum

      But thankfully it hasn't affected my hair so far

      Though it is very coarse which my hair dresser pointed out the other day when had my ends trimmed

  • jan93765
    jan93765 Brummiegirl70

    Posted

    WOW.  My hair dresser is the one that pointed out that I was losing a lot of hair a few years ago.  I still have several spots that are thinning or gone.  I had no idea it was connected.  Does anything help?  I realized late that the Hair, Skin and Nails formulas have iron in them, but perhaps just biotin? 
    • Brummiegirl70
      Brummiegirl70 jan93765

      Posted

      I had no idea either until today when I googled the illness

      Sadly there's a lot of symptoms which each individual suffer

      Just seems I've got all the known symptoms that's been listed

      Though I do have a few incurable illnesses but all symptoms seem to be related to the HH

    • jan93765
      jan93765 Brummiegirl70

      Posted

      I was shocked when I first started reading into HH symptoms - everything from depression/anxiety to heart problems to I don't know what else...  It's frustrating...  you spend years getting treated for the individual symptoms only to finally find it's all related! 

  • hemopatient123
    hemopatient123 Brummiegirl70

    Posted

    I had some hair loss on my legs before I was diagnosed. Then after diagnosis and de-ironing, it has almost all come back
    • Brummiegirl70
      Brummiegirl70 hemopatient123

      Posted

      I'm so hoping mine does too as it's really stressing me out majorally to the extent I've looked into hair replacement on NHS as severally depressing me to the point it's making me paranoid now

  • js21073
    js21073 Brummiegirl70

    Posted

    I lost significant hair - all over.  Head, eyebrows, legs, arms, under arms and pubic area.  My iron is now at a normal level and I have not noticed a significant re-growth.  Some, but I am also taking both Biotin and Vitamin E.  I have about a third less hair on my head than I used to and less than half what I did on my arms and legs.  I have seen both my regular doctor and a dermatologist and neither could explain it other than "stress"  It's been very frustrating.  

    • Brummiegirl70
      Brummiegirl70 js21073

      Posted

      It really is frustrating but mainly embarrassing

      I so far only suffer with my eyebrows with hair loss which I find very difficult to cope with

      As being a main feature on your face & struggle getting them straight & even

      All my symptoms have also been put down to stress though TBH I think now I've been with HH , I think a lot of it is due to the illness itself

      I'm exactly the opposite everywhere else as have to keep up with hygiene so to speak

      Who knows I find I have to do every day which I find strange in itself

      I really hope they find some remedy or cure for all our symptoms soon as the illness itself is a lot to handle in itself :-(

      I wish you all the very best & take my hat off to you all to have had to cope with it all x

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