How many time can you have the mvd surgery?

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I have had the spasms since 2010 and started with Botox doe two years and decided to get the surgery . In 2012 of April I had my first surgery putting the saline pads between my 7 th and 8 th nerve. The recovery didn't go so good lots of complications but I was spasm free .

My head hurts so bad and I kept going back to the surgeon they kept putting me me on different pills and after doing some test he said we need to operate again. So that September they had to open me up and found that there was a lot of scare tissue and a lot of water outside the brain ( why my head felt to heavy I could badly hold it up). I wasn't spasm free and over the last 4 years my head and nose always feels like I have pressure. I started the botox again and isome times I get relieve from the spasms but not the pain my head or nose.

It has taken over my life, although every day I get up and I go to work I never look at anyone directly or laugh or smile ( I look awful when I do).

I live in Canada and if anyone knows of a good doctor that might be able to help stop or make it less or know of a different procedure that would help I would welcome the feed back.

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    So sorry to hear of your bad experience clh.  I am on a number of forums (fora!) and have heard nothing but good about Dr Kauffman (Kaufmann?) in Winnipeg.  He certainly has the best reputation for this type of surgery and has heaps of experience too.  Wishing you the best.  If you want to connect with others who have seen Dr K then join the Facebook Hemifacial Spasm International Support Group.
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