how often?
Posted , 9 users are following.
How often do you get RLS?
0 likes, 15 replies
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Notes on how often?
valda23668 tatianac
Posted
graham9772 tatianac
Posted
Before I started my diet I had restless legs every night from about bedtime, or up to an hour later, until about 5 to 7am For this time I had to keep walking, or at least shuffling, around the "circuit" Lounge room - kitchen - hallway.
Graham
valda23668 graham9772
Posted
graham9772 valda23668
Posted
I have to go now but if you want more details let me know and in the meantime you can read up on the Monash university website. The diet was developed for IBS but I found it works for my RLS
Let me know if you want some help.
Graham
graham9772 valda23668
Posted
Graham
tatianac valda23668
Posted
I never had RLS everyday, it mostly came once every few months or so. I've been following a vegan diet for 2 years now and I haven't gotten RLS, I'm not sure if there is any correlation.
becca20505 tatianac
Posted
coral81968 tatianac
Posted
I get it 24/7 if I don't take my pills to stop it
Amesdkdrake tatianac
Posted
I have had a pretty severe case of RLS. I need to be on two medications 24/7 in order to keep it under control, and then it still makes itself known a couple time a day. Going to bed it the worse. If not on the medications I'm on now the RLS would start within 5 to 20 minutes after going to bed and some nights would be so very bad that I would be walking, shaking legs, walking stairs, doing anything to get myself through. Some nights I would just cry. I had to quit work because I was so tired I would fall asleep anyplace. I quit driving because of the same reason. Also, sitting in a car for an hour or more will bring the RLS on. I have not tried modifying the diet as some have mentioned. RLS is a horrific disease.
graham9772 Amesdkdrake
Posted
I had pretty bad RLS and walking all night was usual.
The thing that helped me most was going on the Monash University low FODMAP diet and also excluding lactose, caffeine, gluten and alcohol. Others who have tried it have had mixed success all the way from almost immediate relief to no use at all In may case I cut out gluten first and had some detectable relief in two weeks or so and then followed the FODMAP diet and after about 12 weeks found a great improvement Gradually found lactose and other particular problems. Now if I stick to my diet I have periods of 20 nights with no symptoms. then a couple of days caused by some factor I don't understand and then back to the good times. The FODMAP diet was designed for IBS but I found it worked for my RLS and I have since found that it works for some others. I can send more information if you are interested.
tatianac
Posted
I would get RLS randomly, once every few months or so, but I've heard that it can come back after a few months or years. If untreated is it possible for this to progress into an everyday thing?
Briansnail1 tatianac
Posted
i take 3 x 1mg per day. timing is 6pm,10pm and 2am.
coral81968 Briansnail1
Posted
coral81968
Posted
coral81968 tatianac
Posted
I have it 24/7 if I don't take ropinarol every 3 hours