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I was first diagnosed with UC in 2017. I had a colonoscopy which revealed moderate pancolitis. I had a couple of flares but taking a few steroids soon cured them. Last Spring though, I suffered a long lasting flare which the steroids couldn't cure. I was hospitalised and had 2 colonoscopies within a week (one without any sedation which was exceedingly painful and caused a great deal of irritation, I'd urge anyone to refuse a colonoscopy without sedation).
I couldn't get on with Azathioprine at all as it completely zapped all my energy and I felt terrible after two Infliximab infusions. I've cut out red meat, coffee, chocolate and alcohol. I find that cabbage smoothies help a fair bit and although I'm not 100% fine, I'm fairly well now and able to live a normal life. I'm slightly anaemic and sometimes go to the loo more often than before but it's not really affecting my work or lifestyle.
My gastro consultant now wants to carry out another colonoscopy but no reason has been offered why this is necessary. I understand that if you have UC for 8 years, the chance of colon cancer is increased so I can see why frequent colonoscopies could be necessary after 8 years. But I really don't want to have another colonoscopy as I cannot see the advantage of having one at all. The prep makes me extremely weak and the colonoscopy itself could irritate my colon to the point of having another flare. I was hoping that a stool test could be a painless way of assessing my colon but I've just found out that my last stool test result was lost!
Anyway, I just wondered if anyone could advise me if they think that another colonoscopy is necessary at this stage and how often someone in my position should have a colonoscopy?
Many thanks in advance
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