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Hi i got diagnosed with LS about 7 years ago but didn't know much about LS until recently when i joined LS groups. Which scared the life out of me because I never really used the ointment that i was given i felt it irritated it more. So I went to my local doctor today and she said i have a small bit of fusing and gave me a ointment,I'm upset because i didn't realised that the ointment slowed it down and i haven't been using it. I was always told to only use it when needed. Do people use it everyday? I just feel i let it get worse without knowing it and now there's nothing i can do. Just looking for some advice on what to do or some reassurance feeling lost. I have LS in the figure 8 and some patches around my breasts. Sorry for long post.
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Hi Patrons, don't go worrying too much about it. It sounds like you only had it mildly? You don't mention itching, burning etc, which thankfully I've not had myself, fingers crossed. If you have some white skin and a small amount of fusing, the dose of Clob ointment for me was once every night for a month, every other night for second month, then maintenance dose of once or twice a week indefinitely. In addition I'm using Ovestin cream (oestrogen) externally 3x a week at night, and Vagifem 2x a week internally. Please look up the borax experiment on here also. That helped my fusing a lot, even though I still have some skin tightness around the perineum area, but it's no longer white. Oils are very important too, especially olive oil for many women, keeps Vulval skin healthy and pliable. Hope this info helps x
Hi Maggie, thank you for replying to me,i do have itching i use Emuaid and have been having baths in baking soda which help with itching i just found the dermovate ointment was irritating me down below so that's why I never really used it. I only learnt more about LS in the last 6 months from LS groups that's how I found out about Emuaid. The new ointment is called Elocon. I will use it and see how i get on, i have read about Borax i will order some and give it a try thank you Maggie x
im very similar in that I don’t itch in my vulval area much but changes are happening! I use the clob about twice a week just to make sure and it seems to help- diet definitely helps with flares but I think not so much with disappearing skin!
i have small white patches on my breasts- is that what you have too? I wondered if they were connected!
Hi Sally, yes I've about 6 patches on my breasts the doctor said they are from LS she said sometimes they go away by themselves but mine have not. A lady told me she used perrins creme complete on them for a few months and they eventually went away so i am going to try that,she said it took a few months. I have one right in under my bra wire it bothers me sometimes. Another lady said she tried apple cider vinegar on her's and they went. I think she mixed it with a little water then applied it. Worth a try.
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