How to apply for disability

Posted , 5 users are following.

Hello I am wondering if anyone has advice for applying for disability for cfs. I am in the u.s. but all advice would be appreciated. I have tried to look up information about applying and people's personal stories but there doesn't seem to be tht many online.

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  • Posted

    So if you are too sick to work what are you supposed to do?      CFS is very serious and can be about as bad of an illness as there is.    

    I just lost my job because I cannot do it anymore.   Haven’t been officially diagnosed yet but after 17 months of ruling everything out I imagine that’s coming soon.   Maybe tomorrow.  

    Hope this isn’t some long battle.  What are you supposed to do for finances and survival?   

    • Posted

      It depends on where you live. I f you live the U.S. you can apply for SSI and SSDI on the social security administration's website. You should apply now because it can take a long time for them to process the application. In think that the first thing that you should do is to get a doctor to diagnose you because that proves that something is wrong and you can possibly get better through treatment. The best thing to do would be to go to CFS doctor but those are sparse. Do you have one in your area? If not try to educate your primary on CFS by bringing information about it or find a doctor who at least knows of it. I think that they key to winning a claim is to get a doctor that can write a letter and support your disability claim. Another things is to get them to do tests that show abnormalities because they want medical proof that something is wrong. There's no diagnostic test for cfs but there's a lot of tests that can be done to show abnormalities in the research setting and there's some in the clinical setting. Don't overdo things and try to rest as much as possible because that will give you a greater chance of recovery. I have heard from many people who pushed themselves too hard and now deeply regret it because it  has worsened their condition. You have a good chance of recovery because you've had it for 2 years. The majority of people who get CFS will see improvement in 4 years especially if they don't push themselves too hard.

    • Posted

      I meant to say within 4 years. 
  • Posted

    Thanks.   

    I just got diagnosed.     

    Now i need to somehow get disability.    This sounds unbelievably ridiculous.   

    Sound like you can’t have any money and it takes forever.     What are you supposed to do?    

    I don’t really have abnormalities other than CFS symptoms.    

    I just think a good response is that if you keep pushing yourself you just keep getting sicker.     I kept pushing  and kept getting sicker.     Finally got fired.     Ill probably get unemployment but that indicates I can work.    I need money obviously as you do.    This is unreal.      

    Do you have to be homeless and wait a couple of years to maybe get approved?   

    This is obviously a hard enough battle and then  you watch your life slip away .      

    I did contact a couple of disability offices.       One sounds like they can help the other sounds like It’s a long  grind to even have a chance.    

    Things just keep getting more hard and depressing.   

    What do you think you can do?   Obviously your young .     Very Sorry your sick too.   

    • Posted

      It will help a lot if you can get your doctor to write you a letter of disability because that proves to them that your doctor doesn't think that you can work and that you are not healthy. Unfortunately as you prob already know there's no diagnostic test for cfs and most of the tests that will show abnormalities are in the research setting. I'm not an expert but I think that you should get tested for HHV 6, EBV, and possibly some enteroviruses. If your antibodies are high it can indicate CFS and that something is wrong. Some other tests that can be done are stress tests and an mri. I would not do the stress test though because it can make you crash afterwards. It won't take a year for them to process your application unless you get denied and have to keep reapplying. I have heard from others that it helps your application if you are very specific about your limitations. For example have substantial difficulty or cannot drive longer than 30 minutes, lift something over 5 pounds, going shopping without crashing. I would also include your mental difficulties because cfs usually causes a lot of them and this makes it so they can't assume that you can do a non physical/mental job. I would also fill out your disability application for how you feel on your bad days not on your good ones. Lastly for the activities that result in you crashing tell them that you are not able to do them. I heard that some people got denied because the disability people somehow claimed that they were able to do some activities, which the people with cfs were, but they did not understand that they would crash afterwards. Good luck and I hope you feel better.  

    • Posted

      If you can, reach out to your family to help you out. I have been trying various treatments in hope that they will help. Ron Davis has been doing great research with the open medicine foundation. I believe that he is most likely person to make a major breakthrough for the disease that will lead to a treatment/cure. His son is extremely sick with CFS. 
  • Posted

    Would wearing a Fitbit help, as it monitors your vital signs?

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