How to ease shoulders with CFS/ME

Hi 

check out the actionforme.org.uk  site lots of info. 

It's not in your head. 

But when you get diagnosed with anything there is shock, anger, fear, frustration , panic etc.... Getting your head round it takes time. Emotions run high...

You can recover from m.e. /CFS 

getting your head around it is key to coping with it and recovering. 

It's not a death sentence and it won't always be this bad... 

There are occupational therapists who can walk you through how to pace yourself back to recovery. 

The web site has info on pacing and on pain etc .... 

You may have fibromyalgia as this goes hand in hand with CFS. 

Worth reading up ..

hope the site helps ... 

 

Hi rachh,

I'm sorry to hear about your pain.  I hope you get better.  I have a whole bunch of stuff wrong with me, but one thing I don't have any more is pain in my upper arms and shoulders.  I was getting treated with prednisone for something else and after just two days the pain in my upper arms and shoulders vanished.  It turns out that particular pain was caused by a really strange disease called "polymyalgia rheumatica."  This only occurs in older people and it is ONLY relieved by steroids and not by anything else.  I had had it for over a year, pills did nothing for it, I only got any relief by using IcyHot on it.  

Ask your doctor about this.  Long term use of prednisone has lots of side effects but with polymyalgia rheumatica responds quickly, within 2 to 3 weeks.  I told my doctor about it and said "I wish you'd given this to me months ago!"

Of course, this may not be what you have but it can't hurt to ask. In the meantime you can try topical applications like IcyHot or some of the other kinds of lotions or patches.  Good luck!

Hi there I can tell by your writting that you feel desperate & I wish I could give you a quick fix but I'm sorry I can't ! What you need to do today is maybe ring the out of hours surgery ( I'm not sure where you live or if you have one ??) get to talk to a dr & then hopefully they will put your mind at rest !! In the long term get your dr to send you to as many specialists as possible DONT just be left helpless ( speaking from experience !!) the louder you shout the more you get help !!

you need medication , education & more importantly you. Need to talk to like minded people who understand you hurt like hell & are NOT GOING MAD !!!!!!!

im at a cross roads myself haveing fibromyalgia for 14 yrs & .M.E, has now been diagnosed also my meds are being changed & for 2 weeks I've not even been able to read emails so today I feel there's light at the end of the tunnel & reading your post has made me feel so sorry for you because it's so frightening learning all this stuff but please believe me you will cope & you will have a life with this illness it just takes time ! Hope I've helped a little good luck & take care dawn x

Hi, Rachh: I'm so sorry you're feeling so bad. Is there anyone you can talk to, like friends or family? Or are you too ill to talk. I've been there. When I was first diagnosed with CFS/ME, I felt so ill I thought I was going to die. I remember Googling types of cancer. Luckily, I was diagnosed within a few months. Well, I use the term "luckily" with a bit of irony. Because I was still left with feeling ill, and it was hard to describe what this meant for me. I was so weak I could hardly lift my arm up. A walk to the refrigerator took all my energy. I mention this because it got better for me. And there's every chance it will get better for you, too. If you're in the UK, I don't think you have one worry we have here in the U.S.--exhorbitant bills if we go to the hospital for emergency treatment. If you are in unbearable pain, maybe the hospital could give you something. I'm not in favor of suffering if there's any possibility of making things better.

Hi x thank you for your replies it always is such a comfort knowing ur not the only one who suffers.. and yet hearing other people and what they go through makes me feel bad cos I dont have it that bad if I could just get the pain taken care of id be able to manage!! 

I ended up going to out of hours he gave me a stronger painkiller and told me to take it with paracetamol and naproxen which has made me feep so ill and sick all evening im regretting it! 

I hope you all are having a better day xx and hope ufeel better.. if thats possible as sometimed it doesnt seem it ! Xxxx

rachh,   extreme ache and weakness, do not seem justify you being on

tramadol (administered after operations etc) there can be serious side

effects from this painkiller,

I suffered shoulder and upper back pain and weakness,

and had once a wk massage in that area, with self massage of arm/shoulder

couple of times a day, go online check out gentle arm movement as in yoga

exercises, then rest rest rest, no lifting shopping bags etc 

 

Hi, microwaved heat packs always help for me when I hit the extreme pain patches.  Don't burn yourself though! I lay down keep moving it between areas and read a book at the same time to help distract my mind.  It's that or climb the wall in pain.