Posted , 5 users are following.
Hi guys!
I was told i had LS by a dr but convinced myself it was herpes after another negative swab and blood test i am ready to accept the LS diagnosis.
Nothing is making the itch better my skin is so sensitive down below it feels as though it could rip, i can barley wear underwear as everything rubs against my skin its been 5 months will things get better with time?
0 likes, 6 replies
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seginns karla41873
Edited
It needs to be treated with a high potency steroid ointment such as clobetasol or betamethasone, but it is a lifelong condition that requires at least monthly use of the steroid. I'm doing much better (diagnosed 2017) but I still need my steroid at least twice a week, and I have to periodically treat for yeast infections since the steroid encourages yeast growth.
SnappyCat seginns
Edited
Karla, Seginns has spoken the gist of it.
It will not get better on it's own. It must be treated with either a steroid or an immunosuppressant (or both). The steroid must be of a higher potency than what is generally available over the counter.
Meanwhile, frequent baths (soak at least 20 minutes), ice, aloe vera gel (pure, no alcohol), aquafor are the go-to's to calm it down.
karla41873 SnappyCat
Posted
Hi, thank you for your reply i am so down about this its the cancer element I am scared, at the start jan i had breaks from the pain now 5 months on i feel i have constant paper cuts ( no real papercuts are present) and my hospital app's keep being changed due to covid.
i was given hydrocortizine cream and its helps very briefly i have started a raw vegan diet but this whole thing is causing me severe panic i cry every day as i am scared that when i do get back in with the dr the news will be worse
Nancy_K_B karla41873
Edited
HI Karla - Nancy here, I have taken the opposite view of either seginns or SnappyCat. It's been two years since i was diagnosed and i've never taken steroids. I have changed my diet and I have studied up on the what nutritional deficiencies I must have had that led to this condition. I am very comfortable now and never get yeast infections. I, like many here, had to go absolutely totally sugar free for some time, though now i can indulge occasionally. I've also eliminated dairy from my diet. For myself, I haven't noticed andy difference from eating wheat products, though i have reduced the amount of them as well. ( As you read up here you'll learn that everyone has slightly different responses - i.e. their bodies need different rebalancing chemistry. Some will swear they can't touch wheat without it causing a LS flare. So you'll want to eliminate the big three major offenders and figure out your particular needs.
I originally learned about vitamin D and magnesium and MSM and zinc from earlier women here over reading back about 7 or 8 years. I studied up and googled nutrition. My cardiologist who also studied nutrition for himself is adamant about the need for vitamin d supplements for everybody. He totally approved my protocol. You can find my whole list with medical studies validations on my profile page links are under the discussions tab.
For immediate topical relief, Karla, many of us have found that rotating through several of the emollients we find best for our particular chemistry will keep us comfortable. At this point in time, I use pure organic coconut oil, aloe vera with tumeric drops added, and liquid vitamin E. I've also used olive oil which some people love, but i find rather runny messy - grin - and one woman said she didn't like smelling like salad dressing! For barrier ointments to keep urine off of raw skin, baby diaper rash zinc ointment has the double benefit of zinc being a known skin healer.
When I was very tender down there, hydrogen peroxide wipes just patting the area, not wiping, is very helpful.
Actually, SnappyCat, I have found several science articles that indicate that Vitamin D has anti-cancer properties.
Feel better soon, Karla and let us know what works for you the best.
karla41873 Nancy_K_B
Posted
Hello, I will look at your profile as i feel my skin is being damaged from all the creams the DR has given me I have myself been wondering if hormones are playing apart in this but i do think I need to read up on how to treat this as best i can it us just the cancer element that is worrying thanks so much
Debbz1989 karla41873
Posted
Hi Karla... did the doctor prescribe steroid cream/ointment? I've found that the Clobetasol has helped me a lot with the itching and uncomfortable flare. But I also moisturize the vulva/anal area as well. That has helped me tremendously with the "tight" feeling. I haven't had any tears since I started moisturizing after showers/baths. And I also soak in Borax baths.
Those three things have helped me a lot. I hope you find relief soon!