How to maintain school and crohns flare?

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Hi everyone,

I am 15 I got diagnosed with crohns when I was about 8. I have been in remission for about 4 years now. About a week ago I noticed blood in the toilet in which I thought was just my period. But I was wrong I started to bleed in larger amounts and started attaining more flare like symptoms. I was wondering how to deal with a flare up and still maintain school work?

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  • Posted

    Sorry to hear this.  Do you have a Nurse attached to your Consultant.   Contact her and tell her what is happening, if not go and see your Doctor.  Are you on tablets or medication of any sort?
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    • Posted

      That sounds alot of mg.  How much in each tablet.?  I am on 4 @ 500mg each a day (2000mg).  My consultant said take all 4 in the morning but I have split to 2 morning and 2 evening and that works for me, touch wood.
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    • Posted

      As Jesse case, I want to know if you have to increase dosage of pentasa and pentassa is aspirin type. Have you ever though that if we take it daily are we contribute to destroy our intestine for the cause of Crohn is using too much aspirin? 
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    • Posted

      Oh thats a better amount, only in your last post you quoted 6,500 mg.  I was a little worried about that amount.
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  • Posted

    I feel so much sorry for you. I thought of my grand daughter. I hope she wont go through what you have been through. You need to be on diet, not eating process food like chips, cheese, bacon, soya milk, etc... You can control it with charcoal and you have to talk to your doctor straight away. Do not delay. Go to emrgency. Did you feel pain, it coulc be something else.
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  • Posted

    I forget to say, God bless.
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    • Posted

      thank you so much for your advice, my crohns doctor insists I take 3000mg of pentasa a day! I feel like this is a crazy amount and ive been taking it for years and years. Do you think if i went on a better diet and took charcoal I could eventually stop taking so much medication?
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  • Posted

    see your doctor about what's happening, so they can plan a treatment. Get them to write a letter for school. Speak to your head of year/college and form tutor. If you can speak to your individual teachers. You should have permission to leave to use the toilet whenever you need. Get resources you need so you can stay on top of you learning if you have to take days off. Make sure you know what topics are being covered. Get the revision guides and use you tube and learning websites. Good luck. I did not get my symptoms until I was in my twenties, however I am a teacher and I CD an say that your teachers want you to do well and will support you. If they know your situation they are in a better position t OK help you. Good luck.

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  • Posted

    Hello, Jesse--I hope your bleeding gets under control.  By way of encouragement, I would like to briefly tell you about my sister, who was diagnosed with Crohn's when she was about thirteen.  I am not so clear about exactly how her disease was discovered, even though I was at the hospital at the time.  My sister is 62 now, so this was long ago.  She was supposed to have an appendectomy and the operation seemed to last forever.  When the surgeon finally appeared, he told our family members that he had discovered Crohn's Disease in my sister and had even removed a portion of her intestine.  That was not the last operation my poor sister had to endure, but to get to the point, despite pain and nausea [which plagued her throughout graduate school] my valiant sister attained a PhD degree.  She is a professor of psychology at a college.  As an older adult, my sister underwent at least one more operation but, overall, she feels much better than she did when she was young.  I do not know which medications she is on these days.  She travels a lot with her SO when she can get away from her schedule at school and enjoys life.  I hope you will get to that point, too.  Science is working on a cure for autoimmune disease.  This I know for certain.

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