How to manage
Posted , 10 users are following.
I have tried everything to avoid medication, didn’t excellent, supplements coming out of my ears. How do people manage this, I know no cure but is there any reprieve with anything? Thanks
0 likes, 20 replies
louise27518
Posted
neilwaud1969 louise27518
Posted
I've 'personally' found a combination of the following works for me;
Codeine
Magnesium
Morphine
Paracetamol
Pregabalin
Oh and FINALLY, like I said, it WORKs for me but it might not work for you!
FINALLY
Leaving Work and going on BENEFITS.
Best of luck for whatever might help for you, and anybody else who reads this post/reply.
louise27518 neilwaud1969
Posted
neilwaud1969 louise27518
Posted
Hi Louise,
My career has started as a Degree qualified Electronics and Telecommunications Engineer, but unfortunately my Fibromyalgia and Fibro-Fog has affected me, my memory, and my technical memory that I now find difficulty in even such basics as Microwaving a Micro-Meal, Changing a Light Bulb, even remembering how to work my TV and TV Recorder thing.
Like I said IT ONLY WORKS FOR ME but I appreciate it's not for everybody.
P.S. I wasn't shouting above with capitalisation, just gets to me why my career is over. During the last 8 years I've gone down hill but my employer DID EVERYTHING they could but eventually enough was enough.
Best of luck to you all....
louise27518 neilwaud1969
Posted
neilwaud1969 louise27518
Posted
louise27518 neilwaud1969
Posted
sue14934 neilwaud1969
Posted
Neil it's good to know that you had a supportive employer - I know many don't.
Magpie2me louise27518
Posted
louise27518 Magpie2me
Posted
About magnesium and minerals. Early days and I do seem
Much more relaxed but feel worse think I am not used to relaxing, have to give everything I have to get through the day! It’s all a vicious cycle.
Magpie2me louise27518
Posted
jude87739 louise27518
Posted
i find i can reduce meds pregablin and amitriptylene when feeling better
magnesium oil spray is good at night
i swim once a week and it has never made me feel worse only better
and i try to walk every day, even if its painful as it lifts my mood
give yourself a break and time to pick up if you feel ill, you may need to cancel things!
diane_11957 louise27518
Posted
I have been exactly the same as you, however I started to learn to embrace this illness because you change.
You will learn to pace yourself and you’ll know when you need to rest. You’ve just got to listen to your body.. why not try chair yoga I found that also helpful. I personally don’t plan a head because I don’t know how I’m going to be.. however Im grateful because ive learned a lot from this illness and now realise that I have burnt myself out.
Hope this helps.
christine26761 louise27518
Posted
I take lots of supplements-double the dosage, I take magnesium in a glass of water every morning also mag supplements. Vitamin d, glucosamine-stopped them and realised they were actually working, Osteo Panadol 2 x 3 times a day..the only prescribed med I take and I’ve been taking it over 20 years and never had it increased is called Endep, it depends who makes it and where you live as to what it’scalled. The ingredient is Amithriplyne
...Amithriptilyne is the only med I take for Fibro...gives me a great pain free sleep..- no pain..still feel a tad drowsy waking up...but that sleep is what makes this Fibro manageable for me..only get flare ups now..once it was just constant pain almost everywhere and sleepless nights..I take it 7pm before bed..it really does work wonders ( for me..that is,) we are all very different..I take 25 mg...never had it increased either ...started on 50mg but I was like a zombie...all the next day..dropped to 10mg for a while-still not too good but 25 mg is perfect for me..it is actually an antidepressant that works excellent for pain..it numbs the nerve ends and stops the pain from jumping on to the next nerve..hence a very painful body...the antidepressant is probably a lil bonus as most of get depressed from time to time..yes it does knock me out to give me that great sleep which is just sooo needed, to be able to deal with the pain etc the next day..but once I'm up and dressed..I'm fine.....Its great...22 years down the track..have to be woken up in the morning..but once up and about I'm just fine.....it's like a miracle med for me... it takes a while to settle in. ..also, please remember that less stress is the key to Fibro....be blessed..have a lovely day..:-) xxx🐻🐻
louise27518 christine26761
Posted
Flutterbie57 christine26761
Posted
SNAP ! I am just having a good wine and a whine on here as it is my 22nd anniversary of having Fibro this month. I gave up looking for cures years ago, but decided I would check on here today to see if a miracle cure has been found. I can't quite believe it has been 22 years of pain. I have been on an antidepressant for years too....I guess it has worked for me as well.
christine26761 Flutterbie57
Posted
Engiy both your wine/whines...whatever floats your boat..enjoy...be blessed...😍😍😍
Meemaw_Maddy Flutterbie57
Posted
sue14934 Meemaw_Maddy
Posted
I take Fluoxetine as a painkiller and this works for me. If I forget to take it (80mg daily), within 24 hours the electrical pulses through my head take a hold and ruin my day. I also take vitamin d, which controls the pins and needles. A friend has suggested I try magnesium too, which I will when I've done a little more research.