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I'm 25, live on my own, 1000 km away from family (not that that matters), renting and earning my own bread. I'm also trying to save up to buy my own place so I can stop renting. So I work at home part time as a medical typist, part time as a beekeeper.
You may say, how could I possibly have CFS if I can manage to work in both physically and mentally taxing jobs, as well as manage housework, cooking, and all the things that come with living on your own. Well the truth is, I don't have a choice. I have to keep paying the bills, have to work as hard as I can, and usually - okay, always - what happens is the housework suffers - I mean really suffers. So much that I have heart failure if someone drops in to visit. Often I run out of decent food but I'm so busy and tired that I can't even make it to the supermarket for days, and the dishes...okay, let's not talk about my dishes.
I have some really good friends, but I feel like no one really understands how tired I get, and how desparately I'm drowning in everything. I feel like I'm stuck between a rock and a hard place; I must to do everything, but I can't. Some days I think I should be in bed, but there's so much to do that it's ridiculous to even contemplate staying in bed. And the fatigue is getting worse - for obvious reasons.
The other frustrating thing is that people totally don't get it...I explain it all to them, and I think they understand, but then they continue expecting too much of me. And I live in a farming environment, and farming people see it as weakness...I think it's just how they're built - they work so hard, and think anyone who can't work hard because they're "tired" is weak.
Does anyone else have a similar situation? Does anyone have advice for this kind of situation??
Well that was a longer rant than I expected...
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