How to use Aloe Vera Gel, Coconut Oil, Witch Hazel
Posted , 15 users are following.
Hi there. I have been diagnosed with LS in February this year, although looking back now with more information at hand, I have been suffering from this for nearly five years, but had always been misdiagnosed. I cannot begin to mention all the vaginal creams and tablets that I have been prescribed.. all to no avail until the biopsies were done. I am now using Dermovate and was using it only when needed, until I watched Dr Goldstein's webinar a few days ago. I picked the link up from this forum. Since then I use it everyday, after soaking for 15 minutes in warm water and then rubbing in the ointment for 90 seconds. In May of this year I was also diagnosed with Lichen Planus. I follow the same procedure with the LP but I do not seem to have as much success here. Patches still coming out all over especially in groin, thighs right down to knees, underarms, under the girl, arms etc. Is there anyone who is using something other that Dermovate for LP and with what success rate? I see on this forum that numerous mention is made of coconut oil, witch hazel and aloe vera gel. I have managed to get hold of coconut oil and 97% aloe vera gel. Is the 97% good enough? In what form does the witch hazel come... is it an essential oil? I have looked around but have not found manuka honey yet. Does anyone in RSA know where I can find this? Then lastly, how do I use the above.. do I mix them all together and put on (how many times a day?) and what is it for? Does it help the itch, scarring, LS itself??? Quite new to this so not sure how to use these. Any advice would be most welcome. Thank you
0 likes, 20 replies
kaycontinental Cuppa_T
Posted
Hi there. Wonderful to have found you.
I have been suffering with LS for around twenty years now. I was divorced when I first found out and needless to say, I have not been able to have any relationships since. It's kinda difficult to go on a date, knowing that at some point you have to say no to sex....
So, no love life. But I digress, sorry.
In the hospital, (I live in Spain) they prescribed a cream called Colpotrofil, and told me that I must insert it into my vagina nightly (there is an applicator included with the cream.) This I did for several months, but this worried me as it is a corticosteroid and I believe that you are not supposed to use these for any length of time.
Long story short, I stopped using it daily and now just use it when I have flare-ups; which of course are horrendous, with the burning and itching sensations, I just can't sit still.
I found this site on Google when looking for some new kind of remedy, preferably a natural one, and as I said at the beginning - wonderful to have found you. I read all the replies and now I am rushing out to see if I can get some Witch Hazel (I think it is called Hamamelis in Spain) and some Dermovate ointment. Thank you all for the replies you wrote to Cuppa T.
I know the last entry was 5 years ago, but maybe somebody will read this and comment.
pat09944 kaycontinental
Posted
Yes, I did read it and thank you too, for writing. I know about people asking what's in your bathroom. It can get awkward. Also get the no sex part, unfortunately. Where is your problem, if I may ask. Mine is perineum, some anal. Have tried a whole cornucopia of stuff..... the natural oils are good. Need to get the honey. After what I've spent on the other stuff the honey's cost won't surprise me. Have not heard of Colpotrofil but it's probably like the clobetasol we have here in the US. What other coping skills do you have? Take care Pat.
MichD67 Cuppa_T
Posted
Hi,
I can completely relate! In addition to LS i also had rash/redness, flakey, itchy and sore at the same time - groin and thigh area - quite badly. I haven't read all the responses but this might be something to look into of you haven't already.
After being misdiagnosed for 2 years and making the rounds from doctor to doctor, goven prednesone, steroid creams etc., I was finally diagnosed with Celiac Disease. At one point it was so bad i couldn't really even wear bottoms; I wore dresses to at least the knee and no underwear because i literally couldn't! Sitting was difficult too so i'd kind of lean on my hip and side.
I didn't have the usual abdominal symptoms of Celiac so it stumped everyone - until I turned 50 and had to have a colonoscopy where the intestinal damage was discovered. Completely getting off gluten made all the external skin issue begin to disappear. I still have LS but now at least it is not compounded by the Celiac skin irritations. Much improved - now if i could just find something to relieve the LS completely. I hope this is at least a little helpful.
do21103 Cuppa_T
Posted
Hey! I use Coconut oil twice a day, or even more if I feel like I need (for example after sex...).
I just rub it gently into the affected areas. It might stain your clothes a bit so make sure to do it in when you're still wearing your PJs.
Just get an organic oil, something that it good for cooking will be good for you V 😃
Let me know if you have any questions!
Btw, I wrote this post a few years ago:
https://patient.info/forums/discuss/i-stopped-using-steroids-read-this--718394
My doctor has a LP patient that has been using the Traumeel compound as well and it showed good results, FYI.
suzzie69345 Cuppa_T
Posted
Please be careful when using aloe vera as I've read that if it is ingested in liquid form long term, it is positively associated with colon cancer xx