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How you feel after your VS

Posted , 7 users are following.

Brummiegirl70
Brummiegirl70

After having my first VS last Friday

I felt as if I had a burst of energy

Which I haven't felt like that for years

But the next day I felt back to the old no get up & go mode again but worse

Headaches haven't stopped & joint / cramp pains are really painful ,

Though I'm wondering if start of arthritis might be the issue with my constant pain

Beings I've got other illnesses & allergic to codeine

The only pain relief I am able to take is paracetomol which don't really help

Ive got my next VS this Friday & so on every week

I'm waiting to see if I get another energy burst as loved feeling like that

If definetly made a nice change

1 like, 11 replies

11 Replies

  • abookreader
    abookreader Brummiegirl70

    Posted

    Ive had 6 so far. One I felt like you felt - just great. Others were the opposite. I think each one in a way had its own distinct flavor to them. One my legs felt really heavy and weak. Another I felt great! Another I had cramps. Another was my shoulder. Just depends. This last one done a week ago was pretty good. 
  • Chris8968
    Chris8968 Brummiegirl70

    Posted

    I had my first one on monday and still don't feel any better. My ferritin level was at 1887 so I have a while to go. I'm going to be going weekly and can't wait to start feeling normal again. I've been having sore joints, stomach pain, tired all the time, and a skin condition the doctor said is related.

    • sheryl37154
      sheryl37154 Chris8968

      Posted

      Hi chris, I am interested in what the skin condition you have that the dr says is related.  All due to my interest in everything hemochromatosis.

      Some say they have itchy skin.  I had a patch at the back of my neck where I reckon the iron in my skin still hung around.  It was evident in my upper body prior to diagnosis.  My collars constantly had a rusty stain despite nightly scrubbing.

    • Chris8968
      Chris8968 sheryl37154

      Posted

      Hi Sheryl.

      My arms started with red red spots, then it turned into dry red spots just like a dry skin condition but it kept worse and worse going from my arms to my legs. It looks pretty bad now and is very noticeable. It doesn't itch or irritate but just looks bad.

    • sheryl37154
      sheryl37154 Chris8968

      Posted

      Thanks, I have not heard of that one.  I wonder how the dr relates it to hemochromatosis.  Not that I am denying it - just what his thinking is.

      Did you notice if you had iron in your skin - darkish when you looked at your arms and legs side on?  Or an inexplicable tan?

    • Chris8968
      Chris8968 sheryl37154

      Posted

      Instead of bronzing I got splotchy red dry skin. I did a google image search and it showed up.
    • sheryl37154
      sheryl37154 Chris8968

      Posted

      I have looked at (too) many images of red rashes but when drilled down none were linked to hemochromatosis.  However, I do wonder if you are having a reaction to iron in the skin.  A common cause is a problem with liver health, which I expect that your dr would be checking on this frequently and you would know if you had liver issues.

       

  • michael1960
    michael1960 Brummiegirl70

    Posted

    Will also be Starting yet another round of VS as from Friday, for 5 wks in a row at least.  While doing the third,they generally do a check.

    Level at 209 now, they want me down to 50/75 ish.

    After that, i generally feel like a Wet Lettuce,fully drained,very tired,and constant aching legs.   Do get the odd Headache at times, but not that often.   So far, have not really experienced that ''Energy Burst''. as yet.

  • Brummiegirl70
    Brummiegirl70

    Posted

    Thank you all for all the information

    I still feel weak & run down from VS Friday

    I keep going dizzy ,

    My aches & pains are still the same

    One thing I've noticed is that I'm sleeping more but guess that's down to feeling run down

    I know fatigue is one of our symptoms but I'm sleeping more last few nights

    Also where I had my VS the week before I've noticed a small lump inside on the side where the needle went in

    Is this normal ?

    Beings I've only just had my second VS I don't know if this happens or not

    • michael1960
      michael1960 Brummiegirl70

      Posted

      Having also had a VS last week, i to feel very Weak,Drained and very tired. It is going to be like that for a while, until the level you have has gone down a bit.   The Treatment alone, can do all that to you.  Also feel dizzy every so often, more so when getting up, just get up slowly.

      Not sure of the lump tho, was there pressure applyed when the needle was taken out, if not u can get some Bruising on and around the needle area.

      And keep your fluids up, Water,Juice,Coffee,Tea.

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