HRT in surgical menopause

Posted , 6 users are following.

Hi

Just wondering if any of you have any good feedback on working out what the heck works for you?!

I'm on fourth year...tried Premarin, estrogen tablets, gels, and last 17 months been on implants. Thought they were going to be fantastic but I'm so sensitive to any fluctuations and have to top up with patches then go through weaning off the patches after a new implant. I've tried estrogen only and also with testosterone. Back in the summer, I added some bio identical progesterone and felt fantastic for three weeks then everything came back.

My symptoms are joint/muscle pain, aches and stiffness, thinning hair, no libido, fatigue, twitching muscles and tingling hands. The pain flare ups are the worst. I saw a specialist yesterday who is going to try me on Hormonin but I'm worried I won't be able to get hold of this. I'm going to top up with gel too. I've been diagnosed with fibromyalgia but am convinced its hormone imbalance as it all started with surgical menopause. Thanks for reading.

0 likes, 23 replies

23 Replies

  • Posted

    I understand. Same as me. I found an exc doc who diag me with RA and began therapies. Thought I was going nuts and didnt understand all of dif symps. Sometimes treating the symptoms is easier n safer than trying treat illness. Being calm, immersed in a hobby, focus on being at your best and most beautiful. Ask doc to treat the most bothersome. Mine was anxiety. Be very conservative in HRT. This means least amt to effect a change without seesaw. Take care now dear lady

    • Posted

      Thank you so much for replying and sorry to hear that you have RA.. I have been tested negative for it. I hope you have found some balance and you are right, high doses of estrogen don't necessary work.

    • Posted

      Thank you for your concern. Glad you tested negative but so did I. I had the vector test. The one you have to pay 2000 and send to California. Showed moderate to severe. So RA factor doesn't always prove.

      I am at two month mark. Went in to talk abt HRT. Blood tests showed perfect levels and I feel better but hair still falling. She said we can back off on testosterone some. Told me to at least try it one more time before deciding to stop. I consider my osteo porosis and pain levels. Dont want to start prolia again in Feb. Been off a yr cause of dental work and implant. Prolia does increase my pain. Guess pixie hair is not that big of a deal compared to positives of HRT. Vag and urethra/bladder health is a great motivator. Had pelvic floor disorder and did physical therapy that cleared up interstitial cystitis. Menopause should grow hair on our chests for being tough enough to survive it! Thank you and if u have any swelling in hands or joints... do the vector test. RA tears up everything

    • Posted

      That's fascinating. I had no idea you could still have RA and it not show on standard bloods. Wishing you well. It sure is a battle and a minefield.

  • Posted

    CHi Lou Lou.. in response to your post I was on premique for years and it was brilliant then they stopped it I had to try a few which didn't suit me I'm now on everel conti which is fab

    Hardly any side effects so I'm happy on this..worth a try ..good luck xx

    • Posted

      Hi thanks for replying and glad you've found something that works for you. Have you had womb and ovaries removed?

    • Posted

      No hun i havent ...sorry to hear that u have...but please ask about the everel they do 2 types xx

  • Posted

    CHi Lou Lou.. in response to your post I was on premique for years and it was brilliant then they stopped it I had to try a few which didn't suit me I'm now on everel conti which is fab

    Hardly any side effects so I'm happy on this..worth a try ..good luck xx

  • Posted

    i was same until i discovered the bio identical pellet.. its amazing fir me.. even fixed my blues..

    they can too up the amounts required according ti your drop levels..

    have u tried this

    thanks K

  • Posted

    i was same until i discovered the bio identical pellet.. its amazing fir me.. even fixed my blues..

    they can too up the amounts required according ti your drop levels..

    have u tried this

    thanks K

    • Posted

      Hi Karen, glad you're doing well, this is what I'm on now but still no stability 😐 thanks though

  • Posted

    I have been using Oestradiol in different forms for 29 years, but never oral, always transdermal. Started with pellets after surgical menopause. Absolutely great. Then they stopped making them so moved to patches - Estraderm MX 100, 100 ug per day, but 2 per week were not enough for me so topped up on the 7th day with Sandrena oestradiol gel. When my patch ran out, within a couple of hours I would feel a sudden overwhelming feeling of anxiety or depression.

    Then I discovered I could get the pellet implants from a compound chemist with a script. I would keep using the patches after implant until I felt a fullness in my breasts like I was ready to breastfeed (usually 3 weeks after). Then I stopped the patches. I did not wean.

    The pellet implants should give you the oestrogen you need when you need it which is different for different times of the day - but you should not notice it. If you have had surgical menopause then you should not need progesterone. when my dr insisted I use progesterone too (for balance) my oestrogen went haywire and back to symptoms. Progesterone is an oestrogen antagonist. When I worked out it was the progesterone after a lot of reading, I told my dr and that I was not going to take it anymore. I must say that this progesterone period really messed up my smooth oestrogen only period and I am now trying to get back to my 'normal'. It will take a long time for my hair to recover, that is, when the progesterone period has grown out.

    Now my reading has produced a report by the research gyneacologist who said that as much oestrogen should be used to eliminate the symptoms of menopause. Some women need a large amount (like me). It is not a bogey as long as you are using the right one and oestradiol is bio-identical.

    But your symptoms also sound like those of haemochromatosis, which if you have the genes, mostly comes on when you have stopped menstruating. I have this and it hit me when I had the hysterectomy. However, my dr did not diagnose me for 9 years. I won't go into the damage it caused but despite the fact I was using oestrogen, I had all your symptoms. So it was not related to menopause.

    When some symptoms return I have to ask myself is it my haemochromatosis (which is treated) or is my oestrogen running out.

    I suggest you ask your dr for an Iron Studies test which will go halfway to identifying if you have haemochromatosis.

    • Posted

      Sheryl thanks for the information. I've never heard of this but it is definitely worth checking out. I will talk to my docs abt this and ask for gene test. Thank you. Spurgeon1

    • Posted

      Thanks so much for all that info. I will look into it. I am already on pellets which I thought would be the answer. Strangely when I added progesterone, I felt fantastic but short term. Nothing seems to last in terms of feeling good or avoiding the pain flare ups which come with a feeling of dropping estrogen as if my body uses more with any exertion and cant catch up! That said I'm having testosterone too thinking it eould help with muscle weakness, all it seems to do is make me moody!

    • Posted

      Yes, I suffer from muscle weakness now attributed to the fatigue, weakness and muscle and bone pain caused by haemochromatosis and I can't do much. Any exertion really knocks me. I have short days. I have more ongoing problems because of the 9 year delay of diagnosis and treatment. I have tried various things and now trying HMB (Calcium Hydroxymethyl-Butyrate), sometimes accompanied by GABA (Gamma Aminobutyric Acid) which I don't like how it has to be taken, so I have gone off the GABA. I can't say that there is any noticeable results. However I started feeling really good after about 3 months, and then found that my GHF-1 was a little high. Endocrinologist sent me off for suppression tests, then I felt weak and tired and achey again.

      There is a research study that found that HMB prevented further wasting of muscle for those who are weakened and bed ridden. That is the best I could find reading research. We need some Growth Hormone Factor but would only be prescribed that if dr is sympathetic.

      In Australia, women don't seem to be prescribed testo because of the bad effects. In fact for men now, it has to be prescribed by a urologist or endocrinologist for medical reasons. My husband being one of them, because of the damage done by chemo and radium therapy for Hodgkins Lymphoma. His testo got so low that oestrogen took over and he started growing breasts.

      The reason for this is to prevent body builders from using it because of the damage it does to them including increased aggression, prostate cancer and many others.

      Haemo is also a hormone thief which makes us need more. I am giving you this info in case your Iron Studies test indicates haemo. If so, then you should be sent for a genetic test. If not positive, ask your dr for a pituitary gland hormone test. This could show up some anomalies which can be treated.

    • Posted

      Yes, moody and hair loss but mustache and sole patch are nice and healthy! Progesterone has not even been mentioned to me. But you must take DIM supplement with the pellet. Helps control the effects I realized. Hang in there. Leveling seems to take months not hours or days. Cold damp weather also makes me hurt more. I notice warm showers feel so good and calm it down. Being calm is key also. Talk to your doc about that. When keyed up the tension also causes muscle pain. I hope you get better and better every day. We have too much to do to be miserable and sore all the time!

    • Posted

      Wow... like what else girl! When it rains it pours. Tests and more tests. But you are being proactive and doing your research. You have a lot to deal with. Really. I will do these and find out. I kno abt things taking yrs to diagnose. Keep your happy and calm. Dont let things overwhelm you. Sometimes I just read, research ancestry or do some kind of craft or art that I can get obsessed with. Keeps my mind off the other stuff. If you get out or have girlfriends it's great but I tend to stay home. I also found out recently my BP and pulse has lowered with HRT. This is a big plus. Didnt kno this could happen. Been yrs 130/90 or more 122 pulse or higher just at rest. Now 114/72 and 76 pulse. This is amazing change. Thanks for your advice. I will use it. You take care.

    • Posted

      I only go pear shaped when my oestrogen is running out. Like recently, and my dr going by my oestrogen bloods considered I was ok. But I was not, and after a bad week of sweats, tears, intolerance/anger, extremely bad hair, unable to cope, incontinence, etc. (all of which would lead to a bad marriage!), I slapped on a patch. A couple of hours later I realised how calm I was, prepared and ate dinner calmly, and life was sweet again.

      Next visit I will tell her I cannot live with her version of appropriate amounts of oestrogen. I will face her in a couple of months when my patches run out. Sometimes she is good about oestrogen, and sometimes she defaults to her personal beliefs.

      I don't have bad effects from oestrogen, all is good. The bad effects appear only if I don't have enough oestrogen. I have read about DIM and I don't want anything suppressing my oestrogen in any form. I have been using oestradiol for 29 years. If something bad was going to occur, it would have by now.

    • Posted

      Thank you. You have a lot of knowledge and experience. Much appreciated. Take care.

    • Posted

      Thank you. Yes I find the weather flares things up. You are right about stress, I have had a recent stressful period so that wont help!

    • Posted

      Funnily enough, I have slapped a patch on and much better. I think its testosterone my body doesn't like!

    • Posted

      I am not surprised, but then I have not had any experience of taking testo. In fact, I take an anti-androgen to get rid of testosterone, as it interferes with my oestrogen. My libido is good with plentiful oestrogen.

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