1. Community
  2. Brain and nerves
  3. Chronic Fatigue Syndrome

HRT side effects with M.E.?

Posted , 4 users are following.

Izzie_Lizzie
Izzie_Lizzie

Hi,

I've got severe M.E. and have been put on "Evorel Sequi 50 patches" and been using them for 6 weeks but the exhaustion and increased sleep has left me unable to do anything and in a constant daze.  Off the scale even for me!

I am 43yr in case that makes a difference to your answer!  I was told I will be on them until I am 51yrs (the average age in the U.K. for the menopause)

Oh and I was diagnosed with POV (premature ovarian failure!)

My questions are - 

Has anyone else had a bad/similar reaction as me to these meds?

What did you do or what other meds have you found to work now

from your doctor?

What alternative supplements have worked for you?

Am just so exhausted I can't go n read loadsa stuff on line to figure it out for myself so really hoping there are some lovely people out there who are having a good day and who are able to offer me some suggestions!

Thank you so much for your help x

0 likes, 11 replies

11 Replies

  • elaine62759
    elaine62759 Izzie_Lizzie

    Posted

    I decided not to use HRT for the menopause as from past experience I seem to have negative side effects from any drugs I've had from doctors and they make my M.E. worse so only take things if they are essential. Have you thought about looking into natural alternatives? Diet and herbs can help. Also yoga. For hot flushes I just use a fan. You can also use a magnet which can supposedly help though I've not tried this myself. Might be worth exploring the natural route first if you feel the drugs are making you worse.

    • Izzie_Lizzie
      Izzie_Lizzie elaine62759

      Posted

      Thanks Elaine,

      "good" to know am not alone with these side effects.

      Like you I don't take anything unless I have too.

      I was strongly advised to use HRT because of the whole premature aging thing still being only 43 especially for my bones so feel I should press in to see if I can find some HRT that will help.

      I had WILD hot flushes and was being wakened every 45minutes during the night so doing nothing is not an option...though a supplement helps with this.  The Doc said supplements might help with symptoms but not the whole premature aging thing....

      But thanks for your input x

    • GeorgiaS
      GeorgiaS Izzie_Lizzie

      Posted

      Doctors don't always know enough about supplements because it's not their field. Silica is said to be good for aging, it helps with Collagen. I've recently started taking it.

  • GeorgiaS
    GeorgiaS Izzie_Lizzie

    Posted

    Wild Yam, a herb, got me through menopause and it's recommended in the years running up to it. When I took it regularly 3 times a day I didn't get as many hot flushes, barely any, and I felt better all round, inc mood wise.

    There was a very expensive supplement for the menopause that women were raving about. I found out that the main ingredient was Wild Yam.

    • Izzie_Lizzie
      Izzie_Lizzie GeorgiaS

      Posted

      That's brilliant thank you!

      Is there a particular brand that works well for you?

    • GeorgiaS
      GeorgiaS Izzie_Lizzie

      Posted

      I order all my herbs from my herbal supplier in bulk. They mainly sell to Herbalists and I had to show them my diploma to buy one particular herb. I'm not sure if they sell the herbs to anyone but I could give you their name if you message me. My reply probably won't get through if I say it here.

      But anyway if you can find a reputable seller of herbs it should be fine.

    • ChrissyC
      ChrissyC GeorgiaS

      Posted

      Hello. I'm a 57 year old ME/CFS sufferer who just happens to be going throught the menopause in the normal way really. But it seems to be going on rather a while. I first started messing around period wise around 50 years old and stopped completely at 52ish. I'm always a hot person (temperaturewise! lol!) but my flushes have been pretty major all the time and just don't seem to be lessening. In fact they're getting worse both in frequency and intensity. Do you think the wild yam would help me at this stage?

    • GeorgiaS
      GeorgiaS ChrissyC

      Posted

      I still occassionally get hot flushes, although I'm nearly over it, and Wild Yam still helps me. In fact if I was taking it every day I'm sure I wouldn't get any flushes but I don't seeing as I'm using quite a few other herbs for other symptoms.

      Wild Yam made a huge difference in the way I got through menopause, and seeing as I have ME too I think it would have been pretty rough without it!

    • ChrissyC
      ChrissyC GeorgiaS

      Posted

      Thanks. I've just been Googling to see if I can get it in England and I think I can, in capsule form anyway. Also read it's used to help diverticulitus which my mother is a martyr to .....

    • GeorgiaS
      GeorgiaS ChrissyC

      Posted

      That's great Chrissy! Remember to take it regularly 3 times a day.

       

    • ChrissyC
      ChrissyC GeorgiaS

      Posted

      But you take the acual raw herb, is that right?
Back to top

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.