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HS from the Philippines.

Posted , 18 users are following.

paopao
paopao

Hi im a filipina who also suffers from HS.

3 likes, 23 replies

23 Replies

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  • veronica60263
    veronica60263 paopao

    Posted

    Hi! <br>

    We are currently screening for possible candidate patients for a study on Hidradenitis Suppurativa and biologics. <br>

    Should you know anyone who might benefit from this study please do refer them to me. <br>

    Thanks so much

    Moderator comment: I have removed the email address as we do not publish these in the forums. If users wish to exchange contact details please use the Private Message service.

  • cristinejoy11
    cristinejoy11 paopao

    Posted

    Hello I'm an 18 years old grade 12 student and I think I have hs because one time I tried to search in Facebook about abscess that are not getting well because I have this since I was 16 I also have anxiety that's why I'm so afraid of this I always think that i might die, I'm having a flare in my underarm near my boobs, when I was 16 it started in my neck above my collarbone I noticed that theres lump there and when I touch it, it hurts and after some weeks I noticed that the lump became in my underarm and it really hurts to the point that I can't put my underarms together to the side of my chest what can I do? I know hs is not common here in ph I'm afraid that it won't get well

    • rickjaysontq
      rickjaysontq cristinejoy11

      Posted

      Hi! Are you from Manila? Try going to United Doctors Medical Center in Quezon City. It's in Welcome Rotonda. Look for Dr. Nelson Dy. You can share your story and tell him you suspect it's HS. He's my surgeon.

  • Peter025
    Peter025 paopao

    Posted

    I am sorry for barging in. I think my body is showing signs of hs like recurrent boils and stretch marks. Can someone refer me to a dermatologist that handle this case? I hope to be diagnosed properly . Cheaper ones if possible cause I am unemployed right now and kinda short on cash. Appreciate any help you could give me. btw i lived in sta cruz manila. I think not all dermatologist knows this disease right? or not? thanks in advance.

    • pat626
      pat626 Peter025

      Posted

      Hi there, Peter! did you find any dermatologist yet who could diagnose you? I'm also looking for one right now. I don't think HS is known by a lot of dermas/doctors here in Manila because I've already had several check ups with a few and none of them know what it is or have brought up that it might be HS. They all just tell me it's an ingrown hair but I know it's more than that.

  • pat626
    pat626 paopao

    Edited

    hi there, paopao! I feel as though I have HS as well 😦 I've been looking for a dermatologist here in Manila that might know more about it but I have had no luck. I even went to this dermatologist who had written an article about it on Philstar but when I came to her and showed her pictures of my past lumps as well and a painful lump that had formed in my underarm , she just dismissed it as some sort of infection. I've already had surgery for the lump in my underarm and I wish I didn't have to get surgery every time a painful lump would grow. It's so expensive ahhhh!

    It's really tough out here in the Philippines, I don't really know who to seek help from. If anyone knows any dermatologist or doctor who is knowledgeable with HS, please let me know. I know there is no cure but I just wish I had some sort of hope to maintain or treat it in some way to lessen my flares 😦 I've been getting lumps a lot more this pandemic.

    • jasu10
      jasu10 pat626

      Posted

      @pat626 hi! omg I think we went to a similar doctor in St. Luke's. But as what happened to you she didn't diagnose me and just sell me her own medicine. she didn't even check out my flare closely. I'm also searching for a good dermatology. Mine is getting less by avoiding trigger foods. I've been living like this for 19 years since I got my first period.

    • cristinejoy11
      cristinejoy11 jasu10

      Posted

      Hello jasu may I know what are those trigger foods you mentioned?

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