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HS is a really bad disease to have

Posted , 5 users are following.

Gabriel51
Gabriel51

Hi

I have had this condition for quite some time now and the really horrible thing about it is that my armpits are not clearing up, even though I have been on anitibiotics the whole time. It is just wet underneath each one and giving off an odour that isn't nice. Does anyone else have the same thing.  I will probably be referred to a dermatologist/skin specialist soon, do you they would be able to do anything, I'm not working at the moment, it's impossible to work.

0 likes, 10 replies

10 Replies

  • aussie76
    aussie76 Gabriel51

    Posted

    Hi Phillipa,

    I had the armpits for years. (I'm 40) One thing I noticed, polyester made it worse.

    I went to the dermatologist who went through more antibiotics then gave me double doses of accutane for months or until I was sick of the side affects (dry skin). It cleared up other acne but didn't get anywhere on the armpits. It works for some apparently.

    I had surgery for similar problems and ended up having intravenous antibiotics for 10 days which inadvertently cleared the armpits.

    When I came out I found each time I ate hot or cold potato chips it started flaring again. Since then I've avoided potato like the plague and nightshades altogether.

    I had previously excluded all sorts of bad things from my diet but since potato was a vegetable I was eating it all the time and the inflammation seems to last a couple of weeks, so I was never clear of it.

    I continue to wash the area with chlorhexidine and if anything ever weeps (after eating something) I make sure to cover it and use iodine. I think the original problem can turn into a secondary infection so would definitely recommend treating it as a wound and caring for it to reduce the bioload. Treat it as transferrable.. Don't re-use towels without washing etc

    Tony

    • Gabriel51
      Gabriel51 aussie76

      Posted

      Thanks for your reply, I have found the information you have given useful.

       

  • Jb7567
    Jb7567 Gabriel51

    Posted

    I've had multiple surgeries in all areas, both armpits, buttocks, groin,and inner thighs. This is a very disabling disease and i feel your pain. Antibiotics can only due so much. Depending on how bad your symptoms are it would help to see a dermatologist and quite frankly you may need to consult with a surgeon especially if the pain and odor is severe. Stay positive and God speed

    • Gabriel51
      Gabriel51 Jb7567

      Posted

      Thanks for your help, I have only had this disease for 7 months, so I am still learning. Hopefully I will not need surgery, I guess I will just have to stay positive, because at the end of the day, I will be terrified.

      Again, thankyou for your help and your kind comments.

  • christine60829
    christine60829 Gabriel51

    Posted

    I have had it for a long time. I have seen a dermatologist. And all he said was. They will never go away we can control them I have been on antibiotics for 7 months now. And still getting them and very painful
    • Gabriel51
      Gabriel51 christine60829

      Posted

      Thanks for your reply, yes they are very painful, but at least I know that when I see the dermatologist, I know there won't be a magic cure.

      Do you find it possible to go to work with this condition?

    • christine60829
      christine60829 Gabriel51

      Posted

      I can't work cause I have other problems then the h s I'm really sick of hurting and. In pain. All the time

  • Jb7567
    Jb7567 Gabriel51

    Posted

    Extremely hard to work,especially with the pain and odor it can admit. That's why it's one of the skin diseases that socia l security recognizes, not every body goes that route but to each his or her own way. The main thing is that quality of life

    • Gabriel51
      Gabriel51 Jb7567

      Posted

      Thanks for the information, yes it is important to maintain your quality of life.

      I am not sure what route I will take yet, but I need to know and consider all the options.

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