hs struggles/frustration.

Sounds like you're really struggling, but that you are really strong! Only one of these sent me into despair. I'm assuming you have, but have you been to see your GP? Personally, I'd be on my way to a&e if I had those symptoms.

Steroid cream, like the type used on eczema, stops mine flaring up if I use some as soon as I see any sign of a lump. Might be worth investigating.

Stay strong and be kind to yourself. Focus on the things you can do for yourself to keep your mind positive, that's still in your control.

Hi, you sound in a bad way, physically and emotionally.

?I think you need to go to casualty and get some immediate treatment. Antibiotics and strong pain relief.

?I would then make an appt with your GP and really be honest about every symptom you are experiencing, the physical and the emotional, and say you need more help with this. You may need a course of steroids as well as ongoing antibiotic therapy, but it sounds as if you need to really talk this through.

?Taking control of your treatment will hopefully make you feel more in control of the whole problem, and that can make you feel a whole lot better emotionally.

?As for your S/O, I can only say that it's hard for people without the condition to understand what you are going through. Try to put aside your feelings of hurt/devastation until you can get this acute flare up under control, and you are feeling better physically. Then maybe take some quiet time out and write down all the problems you experience as a result of this condition. You could then maybe give it to him, or just use it to get all your thoughts in order to discuss it with him. If you can tell him what it is you need from him he might be more able to feel he can give it.

?I hope you can get some treatment and start to feel better soon. Take care. 

Hey, it's awful the pain and suffering this disease causes. The inter-personal part, being a regular member society, having relationships etc... it gets affected hard if we don't work hard to make sure it doesn't.

Maybe you can talk to your doctor about therapy, and with your therapist find ways to communicate to your partner about it without him/her getting frustrated, grossed out or impatient. They don't understand; and they are quite helpless too which makes it even harder. At least that was in my expereince. In any case - I wish you better days and easier times. Good luck. 

Please try taking vitamin B and put sudocreme mixed with turmeric on sores    - you might have to treat one or two sores at a time and have to cover  with fabric plaster.  Antibiotics would also help. This worked for me so it's worth a try

Just a little bit of an update. He took the kids and left me, I told him I wanted to have a bath and go to the E.R. He still didn't believe I needed to go in. I been laying in bed all day in so much pain and just wondering what I did so bad in my life that I deserve all this. Oh man I wish I didn't need to depend on him so much, I had a feeling this was coming sooner or later... But I also have a feeling it's not permanent he probly just needs a break from me, but I wish he had at least taken me to the E.R I don't have anyone else at the moment that I can ask for help & definitely do not want to call an ambulance. I am on anti biotics & am supposed to be seeing a dermatologist every three months being I live 6&1/2 hours away from the only dermatologist in my province but having financial trouble not to mention just even sitting in a car for 20 minutes is difficult ... I just feel like I'm at my wits end