HS sufferer seeking others with my symptoms

Posted , 4 users are following.

I have recently been diagnosed with HS and have all the usual symptoms my problem area been the groin however doctors don't know why when I have a flare up I am extremely sick, random vomiting dizziness nausea fatigue and have had numerous seizures. I have had every test known to man so its not epilepsy or any thing else it only happens when I have the outbreak and the worse the outbreak the worse I feel does any one else with HS suffer these symptoms

0 likes, 5 replies

5 Replies

  • Posted

    Wow, that is crazy. I don't really have many symptoms. I've just been diagnosed and I only have a mild case, but I hope for your sake you find out what is going on and how to help it. Can you keep me updated on how you go?

    • Posted

      Yeah I know doctors are baffled they know it's HS but they can't understand why I'm so sick with it but I'll keep u updated

  • Posted

    Have you managed to work out what your food triggers may be? You may have an extreme intolerance to some foods and the HS is only one of the symptoms...  for instance "Nightshade toxicity"

  • Posted

    Hi this sounds awful and I have never heard of this before.  Have you tried the online symptom checker? This might give you a clue. x

     

  • Posted

     Fatigue has been raised before in this forum -nana naps in the afternoon etc.  I have not had any of the other symptoms. hopefully they can sort it for you !

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