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i was first diagnosed with HSP in 2014 . I had the rash everywhere except my face, i became incontinent due to bowel inflamation and ended up in hospital for 3 weeks on morphine. Since then ive had no rash just the odd bout of bloody pee. 7 weeks ago the rash came back on my legs, over the 7 weeks it has been coming and going it seems to be when im on my feet a lot that day. The pain in my ankles and knees is excrutiating and i feel like nobody is listening. Today i was seen at the docs again due to not being able to hold down food or water for days and i was told that it was a bug. I dont think this is the case as i have a lot of pain in my back and stomach. Due to go back to work on Saturday and just cant see that happening. I feel like doctors are just not bothering and it is really getting me down. Any tips or advice from fellow HSP sufferers?
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