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My daughter (8) screamed with pain 3 nights in 1 week with joint pain in legs, she couldnt walk - but was OK in the mornings - we wrongly put this down to 'growing pains'. Then 4 weeks later she came out in a badly swollen HSP rash on her legs, bottom arms and torso (much fewer on torso and arms), the following week her joints swelled on wrists and ankles and then we had 2 nights the next week in Hospital as she vomited, had major stomach cramps and very bloody pooh. The consultants scanned her for twisted bowels but luckily she was OK and her bowels returned to normal within the week.
Since then we have had blood in her urine dipstick samples most days, luckily only a trace of protein on and off and she has been pretty well in herself. We have seen a gradual decrease over the last 14 weeks of amount of blood in her urine and aggresiveness of her rash - down now to new rash only appearing every few days on the front of her lower legs.
For people at the begining of HSP symptoms, it may be useful to share my 'HSP Rash experience' - my daughter's rash appeared on day 1 as swollen red bite like spots (like allergic reactions to loads of mosquito bites), then day 2 swelling goes down leaving big red spots, day 3 turns to a purple bruise and day 4 brown bruise then that one has gone - although already it had been superceded by many new different ones at different stages of this 5 day lifecycle! As the time passed for my daughter, the rash has become smaller red spots (bit like flea bites) and minimal bruising. I continually had to remind myself that even though it looks really horrific - the rash on the skin does eventually go and isnt in itself dangerous or permanent.
This is a very worrying illness, and I would like to send my best wishes to anyone else suffering from HSP. Apart from our hospital stays, the worst part for me so far is coping with the mental torture of yet more spots every day and the worry about potential ongoing health issues that are reflected by other HSP sufferers on this excellent site (thank you all for contributing as this has really helped me through HSP). I am hopeful that very soon my daughter will be symptom free from HSP - however, until then we will continue with 'spot checks' and 'dipsticks'.
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