HSP going on 2 months

What are they giving him for treatment.  Early prednisone is correlated to better outcomes. You can google it.  Also could be an allergy to something he became allergic to so be careful and track what he eats, especially if it is reoccurring.   Mine came on after sore throat initially also and I kept having repeats, but Prednisone worked pretty well for me until I also figured out I had developed an allergy to something I was not allergic to before.

Hi Christina, my grandaughter was diagnosed at the beginning of March, with severe rash and swelling, which affected every joint, even her head and face, she couldn't walk for nearly 2 weeks due to the pain, and swelling, also blood and protein in her urine, we were beside ourselves with worry, we had to carry on a blanket to move her , I can understand completely how you feel, and I just thought i would reply to tell you, just when you think you can't take it anymore, it does just go away, which it did with my grandaughter, so hang on in there, it will subside, also when my grandaughter, got better my other little grandaughter got it, luckily not the pain. So keep strong.Paula

There is light at the end of the tunnel Christina. First of all I'm really sorry to hear your son has been diagnosed with hsp. I suffered hsp from October 2016 until late feburary 2017. I never thought I'd see the day where I'd be able to show my legs AGAIN without having hideous purpura neither did I think the pain of the joints and kidneys would disapear. Things gradually got worse for me from October meaning December was almost all hospitalised. Please rest. Time off school is needed if so and no stress. I was Urinating nothing but blood, on crutches and couldn't stand at one point and now I can go out at weekends with my friends and family and attend school. Even though this year I haven't been able to keep up to date with my studies and unfortunately sitting no exams my health came first and it took me a while to realise that which is probably the reason why I had became so so I'll. Take care and try not to stress. I promise you things will get better.

Unfortunately his ankles have started to swell, I started treating his symptoms as they appear. He soaks every night in Dead Sea salt, tea tree oil, theives and coconut oil. Seems to help as the swelling had subsided in a few days. He has spent most this week with no new outbreaks until this morning when he woke up with a full blown outbreak. His pediatrician has referred us to a children's hospital in New Orleans to see a specialist because he is still having trace amounts of protein and blood in his urine. However the blood tests keep coming back normal. His doctor feels it is time to see a urologists as he is worried about his kidneys. I am starting to plot outbreaks and am starting to notice that he has them when it is time to exchange custody with his daddy. All that I have read states that auto immune diseases can flare up more during high stress. Any ideas?