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My 10yr old daughter was told on Easter sunday that she has hsp. She has had really bad swelling in her hands feet ankles and knees since . The knee swelling has got better but feet end up like a balloon come late afternoon and the rash always rears its ugly head around the same time! Her temp keeps spiking to 38.7 to 39.1 yet blood pressure seems ok as does her dip test. She is in pain with her hips and complains her tummy hurts but that's not all the time. The other day she was complaining her right side /back was hurting her. She doesn't get a restful sleep but is happy enough to go to school for a few hours altho wheelchair is needed to get her there and back.
She is starting to get very frustrated at this and keeps asking how long it's going to be before she gets better!!
We are in the 4week since rash appeared please help with advise as the hospital just tell me it will take its course and she may get it on and off for life .
Surly something must help recovery. Driving us nuts now , just want my girl to be able to enjoy doing the things she loves without all the pain 😥
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