Posted , 8 users are following.
My daughter then 12 was diagnosed with HSP a year ago...horrific meningitis like rash appeared post severe respiratory infection. For us its the aftermath, trying to explain wwhy she has so much time off school, keeping up with sch work, endless high levels in protein and blood, joint pain, horrific abdominal pain....she is so over it and so am I. Great consultant but an appt every 3 months is just not enough. Have seen cover doctor in the surgery last week as my girl has been ill now for 12 days and the doctor was useless telling me HSP doesnt affect your immunity!!! I mean for gods sake...her immunity crashed that is what started it. Feeling desperate....when will this rubbish time end for her and me!!!
1 like, 31 replies