HSV symptoms and 2 negative IGG tests over 8 months. Need advice!

Hi Hope6428! Your symptoms sound a lot like mine.  I've been suspecting HSV-2 infection also, but I have tested negative for HSV-2 Igg at 4, 7, and 11 weeks post exposure.  I've had severe fatigue, brain fog, lower back(tailbone) pain/buzzing feeling, but no classic outbreaks.  I've also had a few pimple looking things on my legs and butt at different spots that itched a lot.  I had the doctor swab the pimple looking things, but it came back negative and the doctor said that there wasn't really enough to swab.  Besides those symptoms I've had sever headaches and a couple other things that looked more like lesions on my feet, inside my mouth, and one on my hand.  Which led me to thinking to could have been hand foot mouth disease (HFMD), but I'm not sure if that can be tested for.  Those HFMD symptoms could be from an unrelated co-infection though.

Hope6428, I forgot to ask, did you figure out what was causing your symptoms? 

I know this is a late reply, but I have had a very similar experience to you. I had my first primary outbreak over two years ago. When I realised the symptoms were not just thrush I took an online test (swab of vagina) and it came back positive for hsv2. Since then I have pursued treatment through my GP, but like you I believe I have out breaks all over my body - oral lesions constantly, skin crawling and rashes around eyes, midriff. , thighs, legs - chickenpox like spots on buttocks, legs- you name it I've had an outbreak somewhere. Unfortunately, this is so atypical of hsv2 and would go against the grain of calling it a sexually transmitted disease (shock horror) that the medical profession don't believe I have it. This is not helped by the fact that I have been referred to immunology at a large hospital and have had two igg tests a year and 18 months after first outbreak and they came back negative. Why would I be upset if there is no evidence of me having herpes? Surely that is something to celebrate? However I believe my son (aged10) has it and possibly my daughter. With no tested evidence and with the stigma attached to herpes and the tunnel vision of the medical profession to not see hsv2 is an infectious skin condition, which is easily transmitted via sexual contact, sure, I've decided ignorance is better. Also I really might not have it and my symptoms could be a heck of a lot of cheek biting, foliculitis, blepharitis, eczema, vb, bad headache's etc. The clever thing about hsv2 is that it's presentation looks like so many other innocuous skin issues and then it clears up. I'm going to stop worrying about it and keep my fingers crossed for my children. I have spent 6 months trying to get a diagnosis. Remember most people who have hsv2 don't know they have it! IT IS THE ELEPHANT IN THE ROOM!

Hi there. Did you ever find out?

You can go the site honeycomb.click to share your story hand get more info.

My IgG is 0.56 and Omg is 0.78 after 9 months of safe intercourse I am still worried that it may herpes. Red spots appears on my penis for 12 to 14 hrs once in a week. Please reply..Please.

Hope, did you ever find out what your antibody status is now a year later? Did you ever get a new PCR test done?

Doesn’t sound like herpes. Try researching Candida, which is yeast. When i went on a Candida cleanse and changed my diet for life meaning cutting out wheat sugar vinegars high starch vegetables processed foods etc etc my vaginal discharge became clearer and my skin became softer and brighter and my vagina wasn’t irritated all the time. I am having my first hsv outbreak and let me tell you if you try popping these things white doesn’t come out like a pimple.... it becomes red and bleeds clear and has a huge hole because it stems from the nerve and if u pick it becomes black in color, never ever ever pick! Just change your diet and be thankful you don’t have herpes

Hey Hope. I’ve had HSV 2 for the last 6 years. My ex gave it to me, whether she knew about it or not is uncertain after being in a 2 year relationship. I got my first symptom about a year after we broke up. Got the typical herpes symptoms, tingling down my leg/buttocks, skin sensitivity and more aggressive outbreaks when I spend a lot of time in the sun. Thankfully my first outbreak wasn’t bad. I went to the doctor 3 weeks later and got bloods done to test for HSV 2, came back negative. I roughly get an outbreak a month, however the blisters all occur on my lower back (sacrial herpes). Long story short is that I have had several bloods taken and urine samples (HSV 2 can be detected in urine) and all came back negative for HSV 2. I have the symptoms Of HSV 2 and even the blisters to prove it yet the bloods say I don’t have it?! Hopefully this can put some people’s mind to ease. There is a terrible stigma around it considering so many people have it. Honestly I think it’s best to know and precautions can be implemted accordingly.  Hope this helps

Wow, that is very similar to me except my symptoms have been much worse. Blurry vision, very bad headaches, tingling hands and feet, tinnitus, constipation, burning penis to rectum, sores on tongue, what appears to be recurring balantitis, dizziness, etc.

This was all from my penis being very briefly, yet firmly, grasped (urethra was touched) by a hand that was in their own genitals just before.

My doctor said it was very unlikely  for anything to transfer and it was all in my mind (which i find insulting as I know my own body).

My only guesses as to what this could have be due to the nature of contact is herpes as the symptoms line up or possibly Syphilis or a bacterial infection.

Full STD panels (including hsv IGM/IGG)  all came up clean several times up to 8 weeks.

Several Doctors (including infectious disease specialist)  have told me it cannot be herpes but then they don’t know what it could be. 

I would gladly take a case of chlamydia, ghonerrea over this insanity. The not “officially” knowing then then knowing. O my heart it is herpes is almost too much.

I was tested for ureaplasma and mycoplasma but only at 2-3 post exposure so it may have been too soon.

But I also had flu like symptoms for the first ~3 weeks or so.