Hsv1 really has me devastated

Posted , 6 users are following.

I cannot come to terms with this at all. I've not had another outbreak but for past few weeks I've been experiencing tingles in my legs. I've spoken to herpes U.K. Who thought as it's going from one leg to other it's possible it's nerve related and sign it's reactivating although no lesions. They suggested suppressives to see if it stops. I'm like a complete wreck over this. Yesterday I really felt I couldn't go on.

1 like, 21 replies

21 Replies

Next
  • Posted

    You CAN go on. I have hsv-1(g). I was diagnosed back in October. I'm still devastated about it as well. Not as much as I used to be. Just last week I felt a little sense of hope. I finally worked up enough courage to talk to my dr about how I would have a relationship with this. He told me I still could. Even though the guy that I really want probably won't want me anymore because he is so afraid of getting it even though I told him that genital to genital transmission is very uncommon I think it's still the thought of me having it. I feel as though he is the one so I have been a wreck with that as well. How am I supposed to deal with the rejection again. He said he would go to the dr with me to talk to him about it so I am hopeful. You will have good days and bad days. I get twitches in my legs and stuff and think it has to do with the virus. My dr said to try suppressive medicine but this is mostly to help with shedding. He says it pretty much makes it so I don't shed which lessons the already small chance of passing it on. It will take time but eventually you will feel better about yourself. I can't give you a time frame because it has been like 7 months for me and I still feel disgusting most days but at least now there are days that I don't think about the virus. It doesn't consume my life as much. I find myself smiling and laughing again. Usually when I have down time and am not doing anything is when I start to think about it. That's when I don't want to live and find life hopeless. But I feel if I can make any improvements on how I feel. I know that you can as well. I haven't had any other outbreaks either. We need to embrace that. There are some that I have read about that keep getting the outbreaks. Someone always has it worse. I know it's hard to feel like you can go on and hard to think that life will get better but over time it does improve. For me it ha improved slightly. So don't give up I feel it will take a long time for me to get back to feeling a little normal but I'm willing to wait since I have made it this long already. I don't think I will ever be the person I was before I got diagnosed with this again but I will be a different version of myself. I try to look at it as a new me. I think you should look at it like that as well. I'm sorry this is so long and probably not as uplifting as you were hoping for but all I can be is honest. I hope it at least helps you a tiny bit.
  • Posted

    ladies, you'll be fine.

    I get that you feel disgusting and it's hard to come to terms with but at the end of the day, it's a virus, it's a virus that everyone carries some forms of... anyone who's ever had a cold sore or chicken pox.

    it doesn't make a difference to the person that you are and I'm sorry but if people can't see that then they're not worth having in your life.

    I've only been diagnosed for about 3 weeks and when I was diagnosed I was angry and lost, how could someone who knew they had this not say anything but just pass it on? Then I realised it's not going to make anything better, just like getting low and feeling depressed isn't going to make it any better.

    you still have a life and people who care about you and you're going to be just fine, if one day you do meet someone and they reject you because of this then it's their loss and not yours. There will be someone else out there that it won't make a difference to because they can see you for who you are.

    You carry this virus but don'tet it define you.

    if you're getting g tingles really bad then get the suppressive meds and see how they go.

    For outbreaks use original sudocrem in the grey tub, it will clear it faster than anything else and takes the pain away from it.

    Anything else is on you, keep your chins up and smile because you're amazing!!

  • Posted

    GHSV 1 really isnt what others make it out to be. Its all just negative stigma. I was diagnosed the first week of janiary this year. Havent had an OB since, however i did experience tingling sensations down in my groin, i feared it was another OB coming on. But nothing ever happend, even to this day currently im experiencing aches and tingling sensations ( nothing so painful i cant go about my day). But my body doesnt break out in sores, so im not sure if its the same for tingling sensations in your legs. But i dont think it means youll have another OB. At least that doesnt happen for me and i get those tingling sensations.
    • Posted

      Thank you all, just feeling low. I think I'll try suppressives try to regain some control, in my head, although wary of side effects... Didn't like acyclovir. Been advised valtrex. Anyone taking this?

      So angry... At myself and why in gods name there is no cure...

    • Posted

      I was given valtrex for my initial outbreak and that's what my dr has prescribed me for daily use as well. I didn't have any side effects with it. I am not a big medicine person but I take it because I hope that will help the guy I want to be with not be so worried and scared.
    • Posted

      I cant give you much help with supressive therapy. I only took acyclovir for my first OB. Havent gone on it since. USUALLY people with GHSV1 dont need to be on supressive therapy.
    • Posted

      Correct. There's no need to be on daily suppressive meds for gHSV-1, relationship or not. Daily treatment is primarily for gHSV-2, and even then, only those with frequent issues or a negative partner.
    • Posted

      I figured as much. During my fallow up appointment (from my first OB) i asked the doctor about supressive therapy. She said to wait, only if i had frequent OB should i go back and ask to be on supressive therapy.
    • Posted

      Even in a relationship you don't think it's necessary? I'm just fed up with the odd tingling and whether it's connected.. Just can't switch off from this being all consuming.
    • Posted

      Genital Type 1 rarely recurs for most people and sheds much less than genital Type 2, even less than oral Type 1, and apparently rarely passes through sexual intercourse. It is nearly always acquired through receiving oral sex from someone who has it orally. As such, daily suppressive meds are not usually prescribed, except in unusual cases where a person has frequent outbreaks with genital Type 1. It is normally prescribed for genital Type 2, which tends to recur more often and pass far more easily via sex.
    • Posted

      Hi, Its the uncertainty of if/when... I had a bump appear last night although it feels like a bite(where my leg meets my bum cheek) I'm paranoid over every sensation I'm feeling. I'm just distraught and it's on my mind always.
    • Posted

      Not everything that occurs down there is herpes, even if you have it there, and I guess you just have to be rational about it. If it looks and feels like a pimple, for example, and you've had something similar before, then it's probably just that. I was rather paranoid at first, too, but I forced myself to rationalise things in that way and no longer get concerned unless it's something clearly atypical, and even then, I consider what's likely to be herpes or not.
    • Posted

      P.S. And I used to have OCD tendencies when much younger, and am still a bit of a lingering germaphobe, so if I can shake it off, you surely can!
    • Posted

      I just feel so zoned into every feeling thinking is this the start... I'm in such a terrible situation this is a constant reminder. All these random tingles going from one leg to the other has me going crazy. I've just driven and sobbed for the duration, I can't get past this. Just can't cope with the diagnosis and it's been since January. I'm feeling pretty desperate
    • Posted

      The odds of you being frequently on the edge of a recurrence with Type 1 are next to none, and slim even with Type 2! The tingling could well be due to heightened awareness or even anxiety. Best advice is to distract yourself and force yourself to be calm and rational. The more you are able to relax and get on with daily activities, the better it gets.

Report or request deletion

Thanks for your help!

We want the community to be a useful resource for our users but it is important to remember that the community are not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in respect of any healthcare matters. Always speak to your doctor before acting and in cases of emergency seek appropriate medical assistance immediately. Use of the community is subject to our Terms of Use and Privacy Policy and steps will be taken to remove posts identified as being in breach of those terms.