Humari

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Been on humari for around 18 months now and it just doesn't seem to be working anymore. Had to up steroids and still on hydroxychlorine and also need naproxen. Should I stop injecting this as really worried about low immunity and other side effects when I don't seem to be getting any benefit. Anyone else feel the same

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    hi joy

    The same happened to me worked for nearly 2 years then stopped it was explained to me that's how RA works it adapts to be resistant As soon as you can see your RA clinic they will most likely change it not an easy thing at the moment though I know all my RA appointments have been moved to August but if you ring the RA nurses they may arrange another over the

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      Hi yes mine is on August he has already said he will prob change it. I worry its costing the NH S and its not working if I should cancel my delivery. What are you on now. Please. Are you keeping OK. Thanks Joy

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    • Posted

      I am currently on baricinib which is a bio one a JAK inhibitor which is not entirely working I still have my early morning stiffness but I also take MTX injections weekly I have to admit though over years I have developed OA in a few fingers thumbs and knees my knee replacement for 26th march was cancelled

      I can't remember the last one I was on as has been so many over 20 years I was brilliant on it for 3 years then developed neuralgia so was taken off because it was shown in some cases to bring on MS and neuralgia is an early indication apparently I was gutted

      Which is the cycle of this disease just when you think your great and have control it decides to morph and your meds stop working , Iwoul Ring the specialist nurses see whether tell you to cancel they may be able to give you a steroid injection to get you over the 3 months I never take oral steroids I always have injections from my GP or the specialist nurses

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