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Humira next. Advice and your thoughts please

Posted , 5 users are following.

Jokuar
Jokuar

diagnosed with Crohns 16 months ago. Steroids quickly brought acute symptoms under control but took Azathioprine after steroids finished, well for 2 weeks any way.

Could not tolerate Aza and went onto 6-Mercaptopurine for a fairly incident free 8 months. However pancreatitis and high LTP mean I've had to discontinue them.

I am due to start Humira in next week or so and would appreciate your experiences and observations.

Best regards 

Pete W

0 likes, 8 replies

8 Replies

  • justyna17617
    justyna17617 Jokuar

    Posted

    Hi Peter,

    I've been on Humira and Tioguanine for a year now. So far so good. No side effects apart from occasional cold and tiredness. Very happy I can tolerate it as methoraxate made me really sick and aza gave me pancreatitis. Best of luck with Humira!

  • thi20955
    thi20955 Jokuar

    Posted

    I wonder why your doc did not give you Pentasa? People have it and get well on it but I did not. I have fever after that and chest pain. It said in my document which my doc gave me it is more side effect. I think better I use charcoal when it comes to flare symptoms.
  • stephaney28634
    stephaney28634 Jokuar

    Posted

    Hi Peter, I have been Humria injections for 4 months. I have common side effect, headaches and mood swings.
    • Jokuar
      Jokuar stephaney28634

      Posted

      Has it controlled the Chrohn's symptoms?

      How long did it take you to get used to the injections? (Assuming that you self inject)

    • stephaney28634
      stephaney28634 Jokuar

      Posted

      Hi Pete, yes the flare up. I just had too get used to taking the injections, see if I helps.
  • tracey36633
    tracey36633 Jokuar

    Posted

    I started Humira in February after having side effects with methotrexate. The injections take a bit of getting used to and sting a lot, but I don't really think about it anymore. It just comes part of the routine. Have had 1 infection a couple of months after starting but otherwise have been fine. Crohns symptoms are now starting to improve as trips to the loo are less frequent which is good. Seems to make me bloat a little but I'm hopeful that overall it making a positive impact. Just got to make sure you keep up-to-date with your monitoring blood tests to check all is well.

    Good luck and I hope it works well for you.

    Tracey

    • Jokuar
      Jokuar tracey36633

      Posted

      Thanks Tracey

      I had my "training" yesterday and first 4 injections.which went well.

      I hope to see some improvement. 

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