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Humira stopped working

Posted , 3 users are following.

susannah84962
susannah84962

Hi everyone,

I'm 28 and have chron's disease. I have been on humira for 2 years which had worked well. The past few months, however, I have been suffering from a debilitating flair up. My Dr upped my dosage but it hasn't made a difference and am now back on steroids. I was wondering if anyone else had expereinced this with humira? And if anyone had had success with any alternative medications? Thanks. 

0 likes, 7 replies

7 Replies

  • justyna17617
    justyna17617 susannah84962

    Posted

    Hey Susannah,

    I'm exactly the same age as you smile I've only started Humira. If you don't mind me asking: How did you find it? Did you have any bad side effects? My doctor told me that the alternative to immunosuppressants is anti-map teratment. so you can ask your doctor about that hope it goes well for you

  • susannah84962
    susannah84962

    Posted

    Hi Justyna,

    good to hear from you! thanks for the advise, I hadn't heard of ant-map tretaments so I'll ask my Dr about that. When did you get diagnosed with chron's disease? Had you been on any other medication previously? 

    I found Humira really good. I had 2 years in remission with hardly any side effects. The only think I noticed was getting colds slightly more than usual!! Good luck on the humira, it really was the best treatment for me.

    Good luck with the humira! 

    • justyna17617
      justyna17617 susannah84962

      Posted

      I'm glad Humira worked well for you. Did you take any other  immunosuppressants with it? I'm currenlty on combination of Humira + Thioguanine. I was diagnosed when I was 14 so long time ago smile They put me on Pentsa for about 10 years but it didn't do much so later I was put azathioprine and then methotrexate but i couldn't tolerate any of them. Anti-map treatment is not that popular in the uk but yeah deffo worth talking to your doc about it  smile
    • susannah84962
      susannah84962 justyna17617

      Posted

      Hi Justyna, I couldn't tolerate azathioprine or methotexate either which is how I ended up on humira. I'm not on any other immunosuppressants at the moment, I've taken note to research the Thioguanine! Best of luck with the humira. 
  • stephaney28634
    stephaney28634 susannah84962

    Posted

    Hi Susannah, I have crohns and I am 41 years old. I haven't been on humira, I'm on Azathioprine  for my flare up, hasn't work yet. Good luck 
    • susannah84962
      susannah84962 stephaney28634

      Posted

      Hi Stephaney,

      Thanks for your message. Good luck with the Azathioprine. I hope it starts to work for you soon!

  • stephaney28634
    stephaney28634 susannah84962

    Posted

    Hi Susannah, I have the hospitail on 23rd of this month for a follow up appoint to see how I'm getting in with the tablets. I hope you find meds that work for you.
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