husband ? has hodgkins

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my husband has been complaining for the last 6-8 months of feeling unwell. he was a very fit and healthy man prior to this( running 30miles on his 30th birthday last year). Since then he has c/o and i have experienced his night sweats, bony pain in shoulder, weight loss, loose bowel motions, general aches and pains in his abdomen and anaemia. following frequent visits to the doctor he was refered for physio for his shoulder and to gastro for loose bowels- various tests showed bowel was fine, however bloods have from the start been \"a bit off\" , we were told ? possibly a viral infection! at the end of february he discovered a large node on his neck and after going privately we had a fna done and were reassured that it was just a reactive node. Our NHS appt came through 3-4 weeks later and we used this appt as a review as advised by the consultant we saw privately- this new consultant told us that FNA was no way to diagnose hodgkins and that the lump needed to come out. meanwhile following a chest x-ray that was ordered due to new symptom of shortness of breath a ct was done- this has shown multiple enlarged nodes around vena cava, behind stomach, calcified granuloma through lungs, ? splenic involvement and bony involvement. the lump from neck was removed over a week ago and we are still waiting on the results, meanwhile my husband is now having bony pains in his hip at night, all the other symptoms continue- an iron infusion has raised his hgb slightly. all the symptoms are there yet we are still none the wiser, this has to be the worst form of mental torture!!. through this process my husband and i have nearly split up- i could not listen to him any more - all the doctors seemed to think there was very little wrong- bloods \" a bit off\", i told my husband he needed to see a psychiatrist- how wrong was i? our story is not over infact this could be just the beginning!! i dread to think what stage he is at if it is infact hodgkins!!!! :x

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  • Posted

    just to continue our story, it is now a week on and my husband was diagnosed 5 days ago- had his first dose of chemo 2 days ago! it was as we suspected hodgkins lymphoma stage 3-4 b. pet scan was done 2 days ago and awaiting results to confirm staging. my husbands symptoms have gone nearly immediately, feeling slight nausea but well controlled with anti-emetics. time to kick this things ass!!!! sad
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    • Posted

      Hi,

      I'm just wondering how long your ct scan results and then how long from scan results to biopsy, as I am going through similar thing. Hope doing well!

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  • Posted

    Hi i realise that this was a while ago, but the symptoms are exactly what I have, feel so ill, blood has come

    back ok expect raised B12. but now need to get dr listening to me knowing that this is going on so much. I

    know that I dont feel well but need to get help from the medical profession, but when tests are run and things come back ok they tell you not to worry.

    I now have the night sweats, headaches, hip aches, again do loads of exercise, itchy skin, pins and needles all over.

    Hope yr husband ok now.

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  • Posted

    My husband had/has non Hodgkins lymphoma, follicular, grade 2 about eight years ago.  the blood tests showed no sign of the problem . . so it is not a certain test.  It was a heart specialist who noticed it when checking the aorta. . .the kidney specialist had said there was nothing wrong, even when the CAT scan showed 'unexplained adenomas' . . so keep on at the doctors to get this diagnosed as soon as as possible, and get the proper treatment for whatever the problem is 
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  • Posted

    This soubds lik diffuce large B cell Non Hodkins Lymphoma, but I could be wrong...What happened. Did he have a biopsy in the end?
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