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Husband Newly Diagnosed - Not Sure GP is Enough

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trixietyme
trixietyme

Hi. Hope I'm posting this in the right spot.  My DH has spent the past 6 months trying to get a diagnosis and being bounced around from doc to doc. 

His RF has been tested twice during this time, and was 88 and 66. After insurance company complications, he was able to find a GP that ordered blood panel, chest Xray, and full abdomen US. See, in addition to full body severe pain, he has shortness of breath, dizziness, cough, chest pain, leg weakness and heaviness. GP said "oh, I though you may have lung cancer, but apparently you have RA that is trying to kill you." His xray and US showed "nodules or cysts" all over his organs.

He starts on Methotrexate tomorrow, and the GP said see you in July. That's it. We feel like it's not enough. How would you handle this? Does that feel right? Feels like it's not enough.  Thoughts?

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