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I am very glad I found this forum. So much helpful information.
I'm 53 and have had ls 21 years. I've had fusing, but all and all over the years I haven't had many bad flare ups. Only used Clob and it took care of the symptoms. Sex was painful, my OB suggested a dilator which has been a huge help. Well in January of this year, my husband gave me the gift of HVS2. When my doctor diagnosed me you could have knocked me over. My intial symptoms were like a bad ls flare up. Was using Clob, which wasn't working, know I know why! Baking soda baths helped alot. Needless to say I am devastated to have HVS2. My outbreak was worse then anything I've ever experienced with ls. Unfortunately some hvs symptoms are the same as ls. This past weekend I started itching and having some burning while peeing. Checked myself, saw no blisters, just some redness and bruisng. So I started using Clob, omg I felt like I was on fire. No relief at all, so I used the baking soda and I do use coconut oil anyway which has helped. I'm waiting for my appointment with my OBgyn.
I was wondering if anyone has HVS2 along with ls and what has worked or not worked for you. Any advice is appreciated! Thank you!
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